Zika Virus and GBS
The GBS|CIDP Foundation International and its Global Medical Advisory Board are closely monitoring the suspected link between the Zika virus and the onset of Guillain-Barré Syndrome (GBS). Frequently Asked Questions (FAQ) Foundation Sponsored Resources Our Global Medical Advisory Board Chairman, Dr. Ken Gorson, helps us understand the latest information on the Zika Virus and its relationship to…
Incidence of Guillain-Barré Syndrome Rising As Zika Spreads
Dr. Kenneth C. Gorson, MDPresident Elect GBS|CIDP Foundation International Global Medical Advisory BoardGuillain-Barre syndrome (GBS)Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) Medical Research: What is Guillain-Barré Syndrome? What are the main symptoms?Dr. Gorson: Guillain-Barré Syndrome (GBS) is an immune mediated disorder affecting the peripheral motor and sensory nerves and nerve roots, and is the most common cause…
Incidence of Guillain-Barré Syndrome Rising As Zika Spreads
Dr. Kenneth C. Gorson, MDPresident Elect GBS|CIDP Foundation International Global Medical Advisory BoardGuillain-Barre syndrome (GBS)Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) Medical Research: What is Guillain-Barré Syndrome? What are the main symptoms?Dr. Gorson: Guillain-Barré Syndrome (GBS) is an immune mediated disorder affecting the peripheral motor and sensory nerves and nerve roots, and is the most common cause…
GBS|CIDP Foundation International’s Global Medical Advisory Board recommendations on Zika virus and Guillain-Barré syndrome
PHILADELPHIA, /PRNewswire/ — The GBS|CIDP Foundation International has been closely following the fast moving story of Guillain-Barré syndrome following Zika infection first in French Polynesia and now in South America. On February 29, 2016, The Lancet released the first full account of the French Polynesian experience with GBS and Zika. The worldwide incidence of GBS…
Congressman John Garamendi, Champion for GBS in the US Congress
Congressman John Garamendi, recently honored as our Legislator of the Year at our 35th Anniversary Gala, continues to be a Champion for GBS and the GBS|CIDP Foundation! Congressman Garamendi recently released the following “Dear Colleague” letter to help raise awareness and support of our conditions and the services we provide in the wake of the…
FAQs
Answers To The Most Frequently Asked Questions Currently, there is no known cure. But we remain hopeful that will change. Our Global Medical Advisory Board leads in the field of research, treatment and exploring what’s possible for ensuring our patients get the right care and support until a cure is found. Foundation CIDP GBS MMN…
Update on Zika virus and onset of Guillain-Barré Syndrome
The GBS|CIDP Foundation International and its Global Medical Advisory Board is closely monitoring the suspected link between the Zika virus and the onset of Guillain-Barré Syndrome (GBS).
Pregnant mom relives paralysis of Guillain-Barré amid Zika virus scare
Susan Donaldson James TODAY.com Bridget Hamilton was 10 weeks pregnant when Guillain-Barré syndrome struck in 2012. The Dubuque, Iowa, mom spent 84 days in the hospital, much of the time paralyzed and in severe pain, away from her three other children. Guillain-Barré is a rare neuromuscular disease, affecting about 1 in 100,000, but higher rates…
Guillain–Barré Syndrome Associated with Zika Virus Infection in Colombia
Global Medical Advisory Board Member, Dr. David Cornblath, Pens ‘Guillain–Barré Syndrome Associated with Zika Virus Infection in Colombia’ for the The New England Journal of Medicine. Click here to follow link to the article in the New England Journal of Medicine. For PDF version click here.
Our Executive Director, Lisa Butler’s Interview in PPTA Winter Newsletter
Can you tell me about the GBS|CIDP Foundation and the work you do? We were founded 35 years ago by Estelle Benson. Her husband, Bob Benson, was diagnosed with GBS and when she went to look for information and support services for this rare condition, nothing existed. She vowed that she would do something about…
May is National GBS-CIDP Awareness Month
NARBERTH, Pa., May 6, 2016 /PRNewswire-USNewswire/ — GBS-CIDP Foundation Int’l, Narberth, PA, is the preeminent global non-profit organization supporting individuals and their families affected by Guillain-Barré (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), and their variants. The Foundation provides support, education, research and advocacy and is proud to announce May as National GBS-CIDP Awareness Month. GBS,…
An Update from the International Guillain-Barre Study (IGOS) by Dr. Bart Jacobs
The IGOS-1000 cohort has now been tested for the main preceding infections and is currently tested for antibodies extensively. We have also recently finalized a study in IGOS on the association between GBS and SARS-CoV-2 during the first 3 months of the pandemic. In my view this study shows the importance of having an ongoing…
Update from the International Guillain–Barré Syndrome Outcome Study (IGOS)
Diagnosis and management of Guillain–Barré syndrome in ten steps Nature Reviews Neurology: https://www.nature.com/articles/s41582-019-0250-9; Published Sept 20, 2019. Explanation of the above referenced article below.https://creativecommons.org/licenses/by/4.0/ Authors: Sonja Leonhard, Melissa Mandarakas, Francisco de Assis Aquino Gondim, Kathleen Bateman, Maria Lúcia Ferreira, David Cornblath, Pieter van Doorn, Mario Dourado, Richard Hughes, Badrul Islam, S Kusunoki, Carlos Pardo, Ricardo Reisin, Jim Sejvar,…
GBS|CIDP Foundation Announces New Chairman of GMAB
On June 1, 2020, Dr. Ken Gorson officially passed the leadership to Dr. Peter Donofrio as Chairman of our esteemed Global Medical Advisory Board (GMAB). We thank Dr. Gorson for his leadership and many contributions in the past three years including the leadership of the US International Guillain-Barre Syndrome Outcome (IGOS) program, the Zika Virus…
Update from the International Guillain–Barré Syndrome Outcome Study (IGOS)
Diagnosis and management of Guillain–Barré syndrome in ten steps Portuguese Spanish Chinese Nature Reviews Neurology: https://www.nature.com/articles/s41582-019-0250-9; Published Sept 20, 2019. Explanation of the above referenced article below.https://creativecommons.org/licenses/by/4.0/ Authors: Sonja Leonhard, Melissa Mandarakas, Francisco de Assis Aquino Gondim, Kathleen Bateman, Maria Lúcia Ferreira, David Cornblath, Pieter van Doorn, Mario Dourado, Richard Hughes, Badrul Islam, S Kusunoki, Carlos Pardo, Ricardo Reisin, Jim…
