Chelsey Fix

Director of Research and Advocacy

Chelsey is the Associate Director of Research & Advocacy at the GBS|CIDP Foundation International. Chelsey experience in working with rare disease patient communities to advocate to the federal and state government for research funding and fair healthcare regulations. Chelsey holds an MPH degree in epidemiology from Temple University, and is passionate about the relationship between research, policy/laws, and the community. In her spare time, Chelsey loves reading, being outdoors, and walking her current rescue dog, Benji.  

“My favorite part of my job is the passion that people bring! I especially love taking people on their first Congressional visit – either virtual or on Capitol Hill – and watching them become a pro at speaking to Members of Congress and their staff. Everyone usually starts out nervous, but by the end of each meeting is confident and powerful.”