Lisa Butler first joined the GBS|CIDP Foundation community as the parent Liaison for parents with children diagnosed with GBS, following her son Stuart’s diagnosis of GBS in 2002. Lisa brings a wide breadth of experience in managing strategic relationships and the management of volunteers, special events, patient communications, and program expansion.
For nearly ten years, Lisa was responsible for leading customer service teams, underwriters, and technical associates, for the mortgage and insurance industries. Additionally, her philanthropic interests and experience include multiple seats on boards of directors for Foundations with a particular interest in education and community service, including The Germantown Academy and Morris Arboretum.
Lisa officially joined Foundation staff in December 2013 as the volunteer coordinator, where she managed over 200 global volunteers. Her role quickly grew to include the management of advocacy programs for grassroots and high-level advocates. Her role eventually expanded to the direction of the Foundation’s marketing and development programs.
In 2013 Lisa was appointed the Executive Director, where she now manages 12 employees, holds the Foundation vision, and leads their mission to ensure that no one faces these rare conditions alone.
Lisa is responsible for engaging with high-level corporate donors, initiating and re-designing patient programming, and leading legislative efforts that affect the lives of our patient population.
She was recognized by Patient Services, Inc. (PSI) with the 2016 Extraordinary Support Award.
Lisa and her husband Tom – a mergers and acquisitions specialist – have three sons, and most enjoy spending time at their sons’ many athletic activities.