Speaker Series Summary Episode 7:

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Benson Fellowship Research Updates

In this episode of our Speaker Series, we dive into the world of science to understand Guillain-Barré Syndrome (GBS) and Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) from our Benson Fellowship Awardees Dr. Elba Pascual Goñi MD, PhD, Ruth Huizinga, PhD.

Introductions and basis of their research 

What is a Biomarker and why would it be important to the GBSCIDP community? 

What are Antibodies? 

Can you explain the difference between basic research and clinical research? 

What role does each type of research play in improving patient lives?

What inspired you to pursue this question you are trying to understand with this study? 

Are there any unmet needs that you would like to discuss and bring to our audience that you see in this community?

How does your research affect people’s lives?

Does your research have a global impact?

What would be the next step in your research?

Do either of you use AI? 

For Dr. Pascual, is there a positive correlation between serum neurofilament protein levels and disease severity?  

Is there any research to better understand why IVIg is an effective treatment? 

Will any of this research have the potential of neuro-restorative outcomes that repair the myelin around the peripheral nerves? 

How can patients get involved? 

Can a biomarker help shorten the long diagnosis journey for CIDP?

What is the reason for nerve damage being so asymmetrical, especially in CIDP or MMN? 

Where can we find more about your research? 

Final Thoughts from Dr. Huizinga and Dr. Fehmi

Relevant Resources

Centers of Excellence: https://www.gbs-cidp.org/support/centers-of-excellence/

Doctor to Doctor Consult: https://www.gbs-cidp.org/doctor-to-doctor/

Find our Awardee’s Research Here: https://pubmed.ncbi.nlm.nih.gov/

Visit our Research Portal Here: https://www.gbs-cidp.org/research-portal/