Foundation News

14th International Symposium Set for September 2016!

With a little over a year to go, it’s time to start getting ready for our next International Symposium!! One of many highlights of the GBS|CIDP Foundation is our biennial Symposium. We consistently receive an out-pouring of appreciation from attendees for offering such a unique experience for our patients, caregivers, families, and medical professionals. So,…

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Congratulations to our Mazawey Fellowship Recipient

The GBS|CIDP Foundation International proudly announces the recipient of the first Mazawey Fellowship. This year’s winner is Dr. Marielle H.J. Pruppers from the Department of Neurology, University Medical Center Maastricht, Maastricht, The Netherlands. Her study, “IgM Anti-MAG Peripheral Neuropathy: From Proper Assessment to Trial Needs- (IMAGiNe study) was selected for this prestigious award and was…

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Help us #UpgradeYourWorld

Help us #UpgradeYourWorld and do more to improve the quality of life for individuals and families affected by GBS, CIDP, or related syndromes such as MMN. GBS|CIDP Foundation International has the chance to win $500k and technology and support from Microsoft. Public voting will determine the winner so please vote for us each day using…

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Estelle Benson, Founder, Wins PSI’s President’s Award

The Foundation is pleased to announce that our founder, Estelle Benson, was awarded the President’s Award from the Patient Services, Inc. (PSI). The Foundation’s Regional Directors and several Board Members joined the PSI community in honoring Estelle on April 22, 2015. The reception was held in Washington, DC at the Rayburn House Office Building. In…

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Anti-MAG Variant Page Added

The Foundation is proud to announce the publication of an information page about Anti-MAG Peripheral Neuropathy on the Foundation website. The page contains useful information regarding the cause, diagnosis, and treatment of anti-MAG. You can check it out here: https://www.gbs-cidp.org/variants/anti-mag/

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Research Study: Guillain-Barre’ Syndrome

Nursing Researchers from the University of Kansas School of Nursing are performing a research study with participants who have had a moderate to severe case of Guillain-Barre’ syndrome.

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GBS|CIDP Foundation International announces the first recipient of the Benson Fellowship to fund a Peripheral Inflammatory Neuropathy Fellowship

NARBERTH, Pa., Nov. 11, 2014 /PRNewswire/ — The GBS|CIDP Foundation International has announced the recipient of the first Benson Fellowship. This year’s winner is Dr. Ruth Huizinga, from Rotterdam, The Netherlands. Ruth presented her project, “High innate responsiveness to microbial triggers predisposing to the Guillain- Barre’ syndrome: identification of genetic causal variants” at the Foundation’s 13th International…

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Benson Clinical Research Fellowship 2014

The GBS CIDP Foundation International is pleased to announce a competition for the first Benson Clinical Research Fellowship. The aim of the scheme is to provide funds (up to $150k per year for three years) to enable clinicians or non-clinical scientists in training or having recently completed training to engage in a substantial research project…

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GBS/CIDP Foundation International announces the establishment of the Benson Fellowship

NARBERTH, PA, November 8, 2013 /PRNewswire/ – The GBS/CIDP Foundation International has established the Benson Fellowship to fund Peripheral Neuropathy Fellowships in honor of Robert Benson, a survivor of Guillain-Barre’ Syndrome, and his wife Estelle Benson. The Foundation voted to endow over $1,600,000 of its financial resources to initially fund the Fellowship. The purpose of the Benson…

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Save the Date: 13th International Symposium

Dates: October 31st – November 2nd, 2014 Location: Walt Disney World Coronado Springs Resort and Convention Center in Lake Buena Vista, Florida Find out more now! Workshops, “Ask the Expert”, Research Updates, Networking with Members, “Walk & Roll” and much more. Free Airport Transportation on Walt Disney World Express Free WIFI on the hotel property Room Rate $125…

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Campaign to Raise Awareness of Rare Neurological Condition

Neuropathy Action Foundation and GBS/CIDP Foundation International Launch Multifocal Motor Neuropathy (MMN) Campaign to Raise Awareness of Rare Neurological Condition Educational Brochure and Public Service Announcement Intended to Help with Early and Accurate Diagnosis of Serious Condition FOR IMMEDIATE RELEASE, August 15, 2013, Santa Ana, CA — The Neuropathy Action Foundation (NAF) and the GBS/CIDP…

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