The AMPLIFI CIDP clinical study The AMPLIFI study is evaluating the safety and effectiveness of a new investigational drug called IMVT-1402, administered as weekly subcutaneous (SC) injections using an autoinjector in people with Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP). Why is this clinical study being done? Antibodies are molecules in the blood that are produced to…
In recognition of February as MMN Awareness Month, join us for an MMN Ask the Experts webinar focused on Multifocal Motor Neuropathy (MMN). This session will provide an overview of MMN, including diagnosis, treatment options, and emerging research. Featured speakers include Dr. Chafic Karam, neurologist and member of the Foundation’s Global Medical Advisory Board, and…
The Emvigorate study is designed to evaluate how the investigational study drug* may work (also known as efficacy) and how safe it is for the use in adults living with CIDP. This study will evaluate the investigational study drug compared to the current standard-of-care intravenous immunoglobulin (IVIg). *The investigational study drug, empasiprubart, is not approved…
At GBS|CIDP Foundation International, we recognize the power of unity and awareness in the fight against rare diseases. On Rare Disease Day, we stand with our global community to shine a light on Guillain-Barré syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN), and related neuropathies. This day is a vital reminder that…
In 1993, Clive Phillips stood at the bottom of the Col du Télégraphe, a mountain pass in the French Alps, watching the world’s top cyclists tackle the climb during the Tour de France. Some 30 years and a Multifocal Motor Neuropathy (MMN) diagnosis later, Clive found himself back in the same spot. This time, he was…
Meet our new Program Manager, Sandra Bermudez Join us in welcoming Sandra Bermudez to the Foundation team! Driven by a deep passion for helping others live fuller and more joyful lives, Sandra Bermúdez is a Psychologist, Health Coach, MBSR-certified practitioner, and a member of the International Association for Health Coaches. She gently guides individuals in developing…
This speaker series will highlight the mission and impact behind our Foundation-funded grants program, exploring why we invest in research and how research funding drives progress for patients and families affected by rare and immune-mediated neurological conditions such as GBS, CIDP and MMN. The session will showcase how targeted research funding advances scientific discovery, improves…
2026 Multifocal Motor Neuropathy (MMN) Awareness Month It is Multifocal Motor Neuropathy (MMN) Awareness Month, a time to shine a spotlight on Multifocal Motor Neuropathy (MMN) and rally support for those affected by this rare, chronic condition. The GBS|CIDP Foundation International invites you to participate and make a difference! Throughout the month, we’re offering opportunities…
The CASCA Study is evaluating an investigational drug called TAK-411 as a potential treatment for Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP). Why? Although there are available CIDP therapies, disease outcomes and response to treatment can be different. There is a need to develop alternative therapies that may lower patient burden. The CASCA Study researchers are looking…
Looking for a knowledgeable expert to guide your physical therapy journey with GBS, CIDP or MMN? We are delighted to introduce a 6-Part Balance & Strength series produced by members of the Foundation’s Interdisciplinary Health Committee and patients from the community. These simple exercises, instructed by Physical Therapist, Maria Harris & Occupational Therapist, Kathleen Rocca…
Inspire Research, working with a pharmaceutical company, is conducting a research survey tobetter understand the experiences of people living with Chronic Inflammatory DemyelinatingPolyneuropathy (CIDP) who currently use immunoglobulin (IG) therapy If you qualify, you will be invited to complete a one-time online survey that takes about 20–30minutes. You may first be asked a few brief…
Join us for an in-depth review of the current treatment landscape for GBS,CIDP, and MMN with Dr. Jeffrey Allen, Neurologist and Chairman of the GBS|CIDP Foundation International Global Medical Advisory Board. This session will explore established therapies, emerging treatment options, and the latest advances in clinical research. Attendees will gain a clearer understanding of how…
NEW! Coffee Chat Young Adult Virtual Series By: Jocelyn Delgado, OT Student & CIDP Patient This virtual Young Adult Series will be held on Zoom and hosted by Jocelyn Delgado. Navigating young adulthood with GBS or CIDP brings unique challenges, from relationships and work transitions to managing energy, symptoms, and everyday routines. This new six-week…
Principles of Care for CIDP Workshops 2025: Summary and Next Steps To learn more about the Foundation’s ongoing Principles of Care (PoC) initiative, please click here. In October and November 2025, the Principles of Care (PoC) for CIDP project brought together patient advocates and healthcare professionals from across Europe through two in-person workshops designed to…
To write your Senator/Representative, please fill out the letter below including your name, condition/relationship to a patient, as well as your full address, and send to advocacy@gbs-cidp.org Sample Letter: Dear Rep./Sen. _____________, I am a constituent living with [Condition]. Thank you for your leadership on patient care and public health issues. I am reaching out…
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