2026 Multifocal Motor Neuropathy (MMN) Awareness Month It is Multifocal Motor Neuropathy (MMN) Awareness Month, a time to shine a spotlight on Multifocal Motor Neuropathy (MMN) and rally support for those affected by this rare, chronic condition. The GBS|CIDP Foundation International invites you to participate and make a difference! Throughout the month, we’re offering opportunities…
The CASCA Study is evaluating an investigational drug called TAK-411 as a potential treatment for Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP). Why? Although there are available CIDP therapies, disease outcomes and response to treatment can be different. There is a need to develop alternative therapies that may lower patient burden. The CASCA Study researchers are looking…
Looking for a knowledgeable expert to guide your physical therapy journey with GBS, CIDP or MMN? We are delighted to introduce a 6-Part Balance & Strength series produced by members of the Foundation’s Interdisciplinary Health Committee and patients from the community. These simple exercises, instructed by Physical Therapist, Maria Harris & Occupational Therapist, Kathleen Rocca…
Inspire Research, working with a pharmaceutical company, is conducting a research survey tobetter understand the experiences of people living with Chronic Inflammatory DemyelinatingPolyneuropathy (CIDP) who currently use immunoglobulin (IG) therapy If you qualify, you will be invited to complete a one-time online survey that takes about 20–30minutes. You may first be asked a few brief…
Join us for an in-depth review of the current treatment landscape for GBS,CIDP, and MMN with Dr. Jeffrey Allen, Neurologist and Chairman of the GBS|CIDP Foundation International Global Medical Advisory Board. This session will explore established therapies, emerging treatment options, and the latest advances in clinical research. Attendees will gain a clearer understanding of how…
NEW! Coffee Chat Young Adult Virtual Series By: Jocelyn Delgado, OT Student & CIDP Patient This virtual Young Adult Series will be held on Zoom and hosted by Jocelyn Delgado. Navigating young adulthood with GBS or CIDP brings unique challenges, from relationships and work transitions to managing energy, symptoms, and everyday routines. This new six-week…
Principles of Care for CIDP Workshops 2025: Summary and Next Steps To learn more about the Foundation’s ongoing Principles of Care (PoC) initiative, please click here. In October and November 2025, the Principles of Care (PoC) for CIDP project brought together patient advocates and healthcare professionals from across Europe through two in-person workshops designed to…
To write your Senator/Representative, please fill out the letter below including your name, condition/relationship to a patient, as well as your full address, and send to advocacy@gbs-cidp.org Sample Letter: Dear Rep./Sen. _____________, I am a constituent living with [Condition]. Thank you for your leadership on patient care and public health issues. I am reaching out…
Behind every treatment plan is a nurse who will listen, support, and walk beside patients through each stage of their journey. In this webinar, Hannah Smith, a neuromuscular nurse at Northern Care Alliance NHS Foundation in London, United Kingdom with experience in administering IVIG, SCIG, and other immunotherapy treatments, will share what it’s really like…
Living with CIDP: Matthew’s Patient Journey and an Overview of an IVIg Treatment Option for Adults with CIDP This program is sponsored by Pfizer, Inc. Now Available to Watch On Demand Join Chelsey Fix, Director of Research and Advocacy from the GBS|CIDP Foundation International, a neurologist, and a person living with CIDP for the online…
A researcher from Yale University is conducting a short, anonymous survey to learn more about how patients with CIDP have responded to Efgartigimod (also known as Vyvgart hytrulo). Your feedback will help us better understand its effects on symptoms, side effects, quality of life, and the overall treatment experience. This information will be invaluable in…
Going into the GBS|CIDP Foundation International’s 2025 Symposium in Denver, I was prepared for a lot. Fellow staff members and patients told me about how inspiring it was, and how much fun I would have interacting with our community in person. Coming back, I can happily say that all of this came true and more….
Missed the biennial GBS|CIDP Foundation International Symposium? You can still catch up through this engaging conversation with Dr. Aaron Zelikovich, who recently completed his fellowship in neuromuscular disease. In this candid recap, he revisits key lessons from the symposium, highlights his favorite moments, and offers reflections on his own journey from fellow to neuromuscular attending.
Step inside the 2025 GBS/CIDP Symposium with a volunteer’s eyes — where research and human connection collided in unforgettable ways. Chris Willard shares how patient stories, caregiver voices, and real-world breakthroughs made the gathering feel more like a movement than a conference. From the launch of the new Interdisciplinary Health Committee to moments of vulnerability…
We’re proud to highlight Lucy, our volunteer from Bulgaria, whose story of resilience continues to inspire. After her own experience with GBS, Lucy has dedicated her time to supporting others in the community and spreading awareness across borders. You can read about the start of her journey in raising awareness here, where she shares how…
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