Join us for a refresher in the basics for GBS and CIDP; we will cover the diagnosis, treatment, and long-term outcomes for both conditions through a conversation with Dr. Ken Gorson, a former chair of the Foundation’s Global Medical Advisory Board. This webinar will be for educational purposes only and will not be troubleshooting individual…
The FORWARD STUDY The FORWARD STUDY is an open-label study in North America and Europe. The study has been reviewed and approved for ethics and safety. All patients will receive Tanruprubart. The purpose of this study is to better understand Tanruprubart’s effects by collecting information such as: What is Tanruprubart? Tanruprubart (ANX005) is an investigational…
Your Voice Matters- Take part in our research! RTI Health Solutions (RTI-HS), a non-profit research organization, to recruit adults to participate in a focus group. You and fellow participants will be asked about your experiences with chronic inflammatory demyelinating polyneuropathy (CIDP) and your opinions about CIDP treatments. If you have been diagnosed with CIDP, you…
Emnergize CIDP Clinical Trial The Emnergize study is designed to evaluate how the investigational study drug* may work (also known as efficacy) and how safe it is for the use in adults living with CIDP. This study will evaluate the clinical study drug compared to a placebo. *The investigational study drug, empasiprubart, is not approved…
Sharing news as we wrap up our MMN awareness month regarding the research of Professor Simon Rinaldi and Dr. Nicolas Dubuisson, and celebrating a major new $600,000 grant, the Foundation is honored to have helped support their progress in their fight against inflammatory neuropathies. Learn more here.
The AMPLIFI CIDP clinical study The AMPLIFI study is evaluating the safety and effectiveness of a new investigational drug called IMVT-1402, administered as weekly subcutaneous (SC) injections using an autoinjector in people with Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP). Why is this clinical study being done? Antibodies are molecules in the blood that are produced to…
In recognition of February as MMN Awareness Month, join us for an MMN Ask the Experts webinar focused on Multifocal Motor Neuropathy (MMN). This session will provide an overview of MMN, including diagnosis, treatment options, and emerging research. Featured speakers include Dr. Chafic Karam, neurologist and member of the Foundation’s Global Medical Advisory Board, and…
The Emvigorate study is designed to evaluate how the investigational study drug* may work (also known as efficacy) and how safe it is for the use in adults living with CIDP. This study will evaluate the investigational study drug compared to the current standard-of-care intravenous immunoglobulin (IVIg). *The investigational study drug, empasiprubart, is not approved…
At GBS|CIDP Foundation International, we recognize the power of unity and awareness in the fight against rare diseases. On Rare Disease Day, we stand with our global community to shine a light on Guillain-Barré syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN), and related neuropathies. This day is a vital reminder that…
In 1993, Clive Phillips stood at the bottom of the Col du Télégraphe, a mountain pass in the French Alps, watching the world’s top cyclists tackle the climb during the Tour de France. Some 30 years and a Multifocal Motor Neuropathy (MMN) diagnosis later, Clive found himself back in the same spot. This time, he was…
Meet our new Program Manager, Sandra Bermudez Join us in welcoming Sandra Bermudez to the Foundation team! Driven by a deep passion for helping others live fuller and more joyful lives, Sandra Bermúdez is a Psychologist, Health Coach, MBSR-certified practitioner, and a member of the International Association for Health Coaches. She gently guides individuals in developing…
This speaker series will highlight the mission and impact behind our Foundation-funded grants program, exploring why we invest in research and how research funding drives progress for patients and families affected by rare and immune-mediated neurological conditions such as GBS, CIDP and MMN. The session will showcase how targeted research funding advances scientific discovery, improves…
2026 Multifocal Motor Neuropathy (MMN) Awareness Month It is Multifocal Motor Neuropathy (MMN) Awareness Month, a time to shine a spotlight on Multifocal Motor Neuropathy (MMN) and rally support for those affected by this rare, chronic condition. The GBS|CIDP Foundation International invites you to participate and make a difference! Throughout the month, we’re offering opportunities…
The CASCA Study is evaluating an investigational drug called TAK-411 as a potential treatment for Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP). Why? Although there are available CIDP therapies, disease outcomes and response to treatment can be different. There is a need to develop alternative therapies that may lower patient burden. The CASCA Study researchers are looking…
Looking for a knowledgeable expert to guide your physical therapy journey with GBS, CIDP or MMN? We are delighted to introduce a 6-Part Balance & Strength series produced by members of the Foundation’s Interdisciplinary Health Committee and patients from the community. These simple exercises, instructed by Physical Therapist, Maria Harris & Occupational Therapist, Kathleen Rocca…
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