- Symposium Recap With Neuromuscular Fellow
Missed the biennial GBS|CIDP Foundation International Symposium? You can still catch up through this engaging conversation with Dr. Aaron Zelikovich, who recently completed his fellowship in neuromuscular disease. In this candid recap, he revisits key lessons from the symposium, highlights his favorite moments, and offers reflections on his own journey from fellow to neuromuscular attending.
- Speaker Series, A Conversation With A Physical Therapist For GBS,CIDP And MMN
In this episode, we focus on the role of physical therapy (PT) in the recovery and long-term management of Guillain Barré syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN), and related variants. The discussion explores how PT supports patients across different stages of care—fromstabilization in acute settings to restoring independence and fine-tuning…
- Speaker Series, Immune Overdrive; Understanding Overlaps Between GBS, CIDP, MMN, and Other Autoimmune Disorders
In this episode, we explore the complex journey of living with GBS, CIDP, or MMN alongside other autoimmune conditions. In our Speaker Series webinar featuring Dr. Maureen Su, she breaks down how the immune system functions, what happens when it goes off track, and why some individuals develop multiple autoimmune diagnoses. Dr. Su also shares…
- Speaker Series, Mental Health and Integrated Care for the GBS|CIDP Community
Living with Guillain-Barré Syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN), or related conditions can take a toll on both physical and mental well-being. While treatment often focuses on managing neurological symptoms, the impact on mental health is equally important. Join us for this insightful webinar exploring the connection between neurological conditions…
- Aging and Guillain-Barré syndrome: Understanding Typical Aging vs. Residual Effects of GBS
Speaker Series Summary Episode 18: In this episode of our Speaker Series, we dive into what a person might feel as a result of GBS residuals and what that person might feel is normal aging, how to tell the difference, and what to do about these symptoms with University of Pennsylvania neurologist Dr. Chafic Karam….
- Speaker Series Webinar: “Living Well with MMN #MMNAwarenessMonth”
Speaker Series – Episode 16 Summary In honor of MMN Awareness Month, we talked with Dr. Tom Harbo, a neurologist, Pam Stoikopoulos, an MMN patient, Chrissie Jenkins, a Licensed Social Worker and a member of our Board of Directors, and Richard Sperry, a MMN patients and the Foundation’s Chief Strategy Officer. Relevant Resources Centers of…
- Speaker Series Webinar: “Your Immune System and Vaccination”
Speaker Series – Summary This summary is a recap of an episode from our “Ask the Experts” program, where we talked with Dr. Maureen Su, endocrinologist and a research professor at UCLA. This summary will explore vaccine efficacy and the biology of autoimmunity. Relevant Resources Centers of Excellence All about Vaccines Treatments and Access Portal
- Speaker Series Webinar: “Rest & Recovery: Sleep Insights for the GBS|CIDP Community”
Speaker Series – Episode 15 Summary In this Speaker Series episode, we talked with Dr. Brandon Peters, a neurologist, sleep specialist, and researcher at Virginia Mason Franciscan Health in Seattle. This discussion dives into the world of sleep, medications and treatments, lifestyle changes, and other factors that impact sleep. Relevant Resources Sleep Books by Dr….
- Speaker Series Webinar: “How New Treatments are Found: What is Drug Development?”
Speaker Series – Episode 14 Summary In this Speaker Series episode, we talked with Rebecca Aune, Director of Education Programs, and Hayley Mason, Policy Analyst, at the National Organization for Rare Disorders (NORD). This Speaker Series Summary will explore the drug development process and the factors and people that influence it. Resources Learn more about…
- Speaker Series Webinar: “Eating Matters, Tip for Staying Well”
Speaker Series – Episode 13 Summary In this Speaker Series episode, we talked with Ms. Kate Costello, a Licensed Nutrition Specialist, Mentor and Wellness coach, about nutrition and how to eat in the face of challenges with our conditions. Resources Learn more about our Patient Registry Explore other Speaker Series Summaries Join a community with…
