Susan Donaldson James TODAY.com Bridget Hamilton was 10 weeks pregnant when Guillain-Barré syndrome struck in 2012. The Dubuque, Iowa, mom spent 84 days in the hospital, much of the time paralyzed and in severe pain, away from her three other children. Guillain-Barré is a rare neuromuscular disease, affecting about 1 in 100,000, but higher rates…
Dr. Kenneth C. Gorson, MDPresident Elect GBS|CIDP Foundation International Global Medical Advisory BoardGuillain-Barre syndrome (GBS)Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) Medical Research: What is Guillain-Barré Syndrome? What are the main symptoms?Dr. Gorson: Guillain-Barré Syndrome (GBS) is an immune mediated disorder affecting the peripheral motor and sensory nerves and nerve roots, and is the most common cause…
The GBS|CIDP Foundation International and its Global Medical Advisory Board is closely monitoring the suspected link between the Zika virus and the onset of Guillain-Barré Syndrome (GBS).
Neuropathy Community Applauds Enactment of AB 339 Following advocacy by the public health community, AB 339 was recently signed into law, which will help Californians with chronic conditions, like neuropathies, access healthcare by containing certain out-of-pocket costs. The vast majority of Covered California patients will see their specialty drugs capped at $250 per month, per prescription….
The Foundation is pleased to announce that our founder, Estelle Benson, was awarded the President’s Award from the Patient Services, Inc. (PSI). The Foundation’s Regional Directors and several Board Members joined the PSI community in honoring Estelle on April 22, 2015. The reception was held in Washington, DC at the Rayburn House Office Building. In…
The Foundation is proud to announce the publication of an information page about Anti-MAG Peripheral Neuropathy on the Foundation website. The page contains useful information regarding the cause, diagnosis, and treatment of anti-MAG. You can check it out here: https://www.gbs-cidp.org/variants/anti-mag/
“Improving Outcomes in Individuals with Autoimmune Neuromuscular Diseases: Practical Considerations for Identification, Differential Diagnosis, and Management” can be accessed online by visiting www.peerviewpress.com/r354.
Neuropathy Action Foundation and GBS/CIDP Foundation International Launch Multifocal Motor Neuropathy (MMN) Campaign to Raise Awareness of Rare Neurological Condition Educational Brochure and Public Service Announcement Intended to Help with Early and Accurate Diagnosis of Serious Condition FOR IMMEDIATE RELEASE, August 15, 2013, Santa Ana, CA — The Neuropathy Action Foundation (NAF) and the GBS/CIDP…
Recently, one of the physicians on the GBS/CIDP Foundation Medical Advisory Board saw a man who carried the diagnosis of CIDP for 2 years. During that time, he received IVIg monthly for 18 months then plasmapheresis monthly for five months without any clinical improvement. He went to a GBS/CIDP Foundation Center of Excellence where it…
Former quarterback Danny Wuerffel has been diagnosed with Guillain-Barré syndrome, a rare autoimmune disorder that causes paralysis. Wuerffel noticed he was losing sensation in his legs and strength in his arms shortly after he battled a stomach virus June 4. Read the complete article here.
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