Topics of Interest

The GBS|CIDP Foundation is constantly working with our legislators on Capitol Hill to pass legislation that both directly and indirectly improves the lives of our patients. Here’s a snapshot of what we accomplished in 2015, and what we have on the docket for 2016: Consistent with the community’s request, NIH received an additional $2 billion…

Neuropathy Community Applauds Enactment of AB 339 Following advocacy by the public health community, AB 339 was recently signed into law, which will help Californians with chronic conditions, like neuropathies, access healthcare by containing certain out-of-pocket costs. The vast majority of Covered California patients will see their specialty drugs capped at $250 per month, per prescription….

With a little over a year to go, it’s time to start getting ready for our next International Symposium!! One of many highlights of the GBS|CIDP Foundation is our biennial Symposium. We consistently receive an out-pouring of appreciation from attendees for offering such a unique experience for our patients, caregivers, families, and medical professionals. So,…

The GBS|CIDP Foundation International proudly announces the recipient of the first Mazawey Fellowship. This year’s winner is Dr. Marielle H.J. Pruppers from the Department of Neurology, University Medical Center Maastricht, Maastricht, The Netherlands. Her study, “IgM Anti-MAG Peripheral Neuropathy: From Proper Assessment to Trial Needs- (IMAGiNe study) was selected for this prestigious award and was…

Help us #UpgradeYourWorld and do more to improve the quality of life for individuals and families affected by GBS, CIDP, or related syndromes such as MMN. GBS|CIDP Foundation International has the chance to win $500k and technology and support from Microsoft. Public voting will determine the winner so please vote for us each day using…

The Foundation is pleased to announce that our founder, Estelle Benson, was awarded the President’s Award from the Patient Services, Inc. (PSI). The Foundation’s Regional Directors and several Board Members joined the PSI community in honoring Estelle on April 22, 2015. The reception was held in Washington, DC at the Rayburn House Office Building. In…

The Foundation is proud to announce the publication of an information page about Anti-MAG Peripheral Neuropathy on the Foundation website. The page contains useful information regarding the cause, diagnosis, and treatment of anti-MAG. You can check it out here: https://www.gbs-cidp.org/variants/anti-mag/

“Improving Outcomes in Individuals with Autoimmune Neuromuscular Diseases: Practical Considerations for Identification, Differential Diagnosis, and Management” can be accessed online by visiting www.peerviewpress.com/r354.

Keynote Address from the 13th International Symposium given by Given by Bart C. Jacobs, Member.

Neuropathy Action Foundation and GBS/CIDP Foundation International Launch Multifocal Motor Neuropathy (MMN) Campaign to Raise Awareness of Rare Neurological Condition Educational Brochure and Public Service Announcement Intended to Help with Early and Accurate Diagnosis of Serious Condition FOR IMMEDIATE RELEASE, August 15, 2013, Santa Ana, CA — The Neuropathy Action Foundation (NAF) and the GBS/CIDP…

Former quarterback Danny Wuerffel has been diagnosed with Guillain-Barré syndrome, a rare autoimmune disorder that causes paralysis. Wuerffel noticed he was losing sensation in his legs and strength in his arms shortly after he battled a stomach virus June 4. Read the complete article here.