Step inside the 2025 GBS/CIDP Symposium with a volunteer’s eyes — where research and human connection collided in unforgettable ways. Chris Willard shares how patient stories, caregiver voices, and real-world breakthroughs made the gathering feel more like a movement than a conference. From the launch of the new Interdisciplinary Health Committee to moments of vulnerability…
We’re proud to highlight Lucy, our volunteer from Bulgaria, whose story of resilience continues to inspire. After her own experience with GBS, Lucy has dedicated her time to supporting others in the community and spreading awareness across borders. You can read about the start of her journey in raising awareness here, where she shares how…
The MIgGRATE Study is evaluating an investigational immunoglobulin G (IgG) drug called TAK-881 as a potential treatment for Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP). TAK-881 is a subcutaneous IgG treatment with a higher IgG concentration than HYQVIA®, which will allow for a smaller amount of the IgG Treatment to be administered under the skin. TAK-881 has…
We’re headed back to Australia! The GBS|CIDP Foundation International is excited to announce that we are headed back to Australia for a Regional Conference in Melbourne! Our last regional gathering in Australia was held in Sydney in 2019, and we are thrilled to return and reconnect with patients, families, and medical professionals from across the…
In this episode, we explore the complex journey of living with GBS, CIDP, or MMN alongside other autoimmune conditions. In our Speaker Series webinar featuring Dr. Maureen Su, she breaks down how the immune system functions, what happens when it goes off track, and why some individuals develop multiple autoimmune diagnoses. Dr. Su also shares…
CAPTIVATE: A Clinical Trial for Patients with CIDP What is this trial about? The CAPTIVATE study is testing a new medicine called DNTH103 to see if it can help people with CIDP (Chronic Inflammatory Demyelinating Polyneuropathy). What is CIDP? CIDP is a rare condition where your body’s defense system (immune system) mistakenly attacks the protective…
Do you have Multifocal Motor Neuropathy (MMN)? Clinical Outcomes Solutions, a healthcare research company, is conducting research about the experience of living with MMN. We are looking for adults with MMN to help fine-tune an MMN-specific patient reported outcome measure (PRO) that can be used in clinical trials and clinical settings. The newly designed PRO…
This week, the GBS|CIDP Foundation International is proudly represented in Mexico City as we continue our mission to raise global awareness and support for those affected by GBS, CIDP, and related conditions. Our Chief Strategy Officer, Richard, and dedicated Board Member, Valentina, are attending the Solane Conference, connecting with international medical leaders and patient advocates…
On May 22nd, the GBS|CIDP Foundation International hosted a heartfelt and informative Neuro Nurse Coffee Chat, bringing together our community of neurology nurses and infusion nurses for a warm and welcoming virtual gathering. From seasoned neuro nurses to those newer to the field, participants shared experiences, asked questions, and found solidarity in their dedication to…
Be Part of the Tour de MMN – Local Meet-Ups to Support a Global Cause Join us for a Tour de MMN Community Meet-Up, a series of special gatherings to support Clive Phillips, Multifocal Motor Neuropathy (MMN) Patient and his team as they embark on an extraordinary cycling journey inspired by the 1955 Tour de…
The first biennial GBS|CIDP Foundation Leadership Collaborative convened in Boston! Every two years, the Foundation will bring together leadership from our Global Medical Advisory Board and other key experts to address emerging challenges that disrupt the treatment, care, or innovation in GBS, CIDP, and MMN. This year’s Collaborative began by listening to patients. In an initial meeting,…
Patient Scholarship Application Now Closed! We’re excited to offer a limited number of Patient Scholarships for our 2025 Denver, Colorado Symposium, made possible by the generosity of our industry partners! Each scholarship provides up to $1,000 USD in reimbursable funds to help cover your travel and hotel accommodations for the event. Recipients are responsible for…
Speaker Series Summary Episode 18: In this episode of our Speaker Series, we dive into what a person might feel as a result of GBS residuals and what that person might feel is normal aging, how to tell the difference, and what to do about these symptoms with University of Pennsylvania neurologist Dr. Chafic Karam….
A Phase 3, Randomized, Double-Blinded, Double-Dummy Study Evaluating the Efficacy and Safety of Empasiprubart Versus Intravenous Immunoglobulin in Adults with Multifocal Motor Neuropathy A Study to Assess the Efficacy and Safety of Empasiprubart Versus IVIg in Adults with Multifocal Motor Neuropathy (Empassion) The main purpose of this study is to compare empasiprubart and IVIg in…
On Saturday 22 March 2025 Neuromuscular Diseases Day, Director of International Affairs, Nancy DiSalvo represented the Foundation at an event held simultaneously in 19 Italian cities. Many healthcare and legislative were represented with the participation of authorities, ASP management, expert neurologists, physiotherapists, patients and patient associations. Special thanks to Dr. Marcello Romano and the Center…
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