2026 Multifocal Motor Neuropathy (MMN) Awareness Month It is Multifocal Motor Neuropathy (MMN) Awareness Month, a time to shine a spotlight on Multifocal Motor Neuropathy (MMN) and rally support for those affected by this rare, chronic condition. The GBS|CIDP Foundation International invites you to participate and make a difference! Throughout the month, we’re offering opportunities…
Looking for a knowledgeable expert to guide your physical therapy journey with GBS, CIDP or MMN? We are delighted to introduce a 6-Part Balance & Strength series produced by members of the Foundation’s Interdisciplinary Health Committee and patients from the community. These simple exercises, instructed by Physical Therapist, Maria Harris & Occupational Therapist, Kathleen Rocca…
Inspire Research, working with a pharmaceutical company, is conducting a research survey tobetter understand the experiences of people living with Chronic Inflammatory DemyelinatingPolyneuropathy (CIDP) who currently use immunoglobulin (IG) therapy If you qualify, you will be invited to complete a one-time online survey that takes about 20–30minutes. You may first be asked a few brief…
Join us for an in-depth review of the current treatment landscape for GBS,CIDP, and MMN with Dr. Jeffrey Allen, Neurologist and Chairman of the GBS|CIDP Foundation International Global Medical Advisory Board. This session will explore established therapies, emerging treatment options, and the latest advances in clinical research. Attendees will gain a clearer understanding of how…
NEW! Coffee Chat Young Adult Virtual Series By: Jocelyn Delgado, OT Student & CIDP Patient This virtual Young Adult Series will be held on Zoom and hosted by Jocelyn Delgado. Navigating young adulthood with GBS or CIDP brings unique challenges, from relationships and work transitions to managing energy, symptoms, and everyday routines. This new six-week…
Living with CIDP: Matthew’s Patient Journey and an Overview of an IVIg Treatment Option for Adults with CIDP This program is sponsored by Pfizer, Inc. Now Available to Watch On Demand Join Chelsey Fix, Director of Research and Advocacy from the GBS|CIDP Foundation International, a neurologist, and a person living with CIDP for the online…
Going into the GBS|CIDP Foundation International’s 2025 Symposium in Denver, I was prepared for a lot. Fellow staff members and patients told me about how inspiring it was, and how much fun I would have interacting with our community in person. Coming back, I can happily say that all of this came true and more….
Step inside the 2025 GBS/CIDP Symposium with a volunteer’s eyes — where research and human connection collided in unforgettable ways. Chris Willard shares how patient stories, caregiver voices, and real-world breakthroughs made the gathering feel more like a movement than a conference. From the launch of the new Interdisciplinary Health Committee to moments of vulnerability…
We’re proud to highlight Lucy, our volunteer from Bulgaria, whose story of resilience continues to inspire. After her own experience with GBS, Lucy has dedicated her time to supporting others in the community and spreading awareness across borders. You can read about the start of her journey in raising awareness here, where she shares how…
The MIgGRATE Study is evaluating an investigational immunoglobulin G (IgG) drug called TAK-881 as a potential treatment for Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP). TAK-881 is a subcutaneous IgG treatment with a higher IgG concentration than HYQVIA®, which will allow for a smaller amount of the IgG Treatment to be administered under the skin. TAK-881 has…
We’re headed back to Australia! The GBS|CIDP Foundation International is excited to announce that we are headed back to Australia for a Regional Conference in Melbourne! Our last regional gathering in Australia was held in Sydney in 2019, and we are thrilled to return and reconnect with patients, families, and medical professionals from across the…
In this episode, we explore the complex journey of living with GBS, CIDP, or MMN alongside other autoimmune conditions. In our Speaker Series webinar featuring Dr. Maureen Su, she breaks down how the immune system functions, what happens when it goes off track, and why some individuals develop multiple autoimmune diagnoses. Dr. Su also shares…
CAPTIVATE: A Clinical Trial for Patients with CIDP What is this trial about? The CAPTIVATE study is testing a new medicine called DNTH103 to see if it can help people with CIDP (Chronic Inflammatory Demyelinating Polyneuropathy). What is CIDP? CIDP is a rare condition where your body’s defense system (immune system) mistakenly attacks the protective…
Do you have Multifocal Motor Neuropathy (MMN)? Clinical Outcomes Solutions, a healthcare research company, is conducting research about the experience of living with MMN. We are looking for adults with MMN to help fine-tune an MMN-specific patient reported outcome measure (PRO) that can be used in clinical trials and clinical settings. The newly designed PRO…
This week, the GBS|CIDP Foundation International is proudly represented in Mexico City as we continue our mission to raise global awareness and support for those affected by GBS, CIDP, and related conditions. Our Chief Strategy Officer, Richard, and dedicated Board Member, Valentina, are attending the Solane Conference, connecting with international medical leaders and patient advocates…
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