Be Part of the Tour de MMN – Local Meet-Ups to Support a Global Cause Join us for a Tour de MMN Community Meet-Up, a series of special gatherings to support Clive Phillips, Multifocal Motor Neuropathy (MMN) Patient and his team as they embark on an extraordinary cycling journey inspired by the 1955 Tour de…
The first biennial GBS|CIDP Foundation Leadership Collaborative convened in Boston! Every two years, the Foundation will bring together leadership from our Global Medical Advisory Board and other key experts to address emerging challenges that disrupt the treatment, care, or innovation in GBS, CIDP, and MMN. This year’s Collaborative began by listening to patients. In an initial meeting,…
Patient Scholarship Application Now Open! We’re excited to offer a limited number of Patient Scholarships for our 2025 Denver, Colorado Symposium, made possible by the generosity of our industry partners! Each scholarship provides up to $1,000 USD in reimbursable funds to help cover your travel and hotel accommodations for the event. Recipients are responsible for…
A Phase 2, Open-label Study to Evaluate the Safety, Tolerability, and Efficacy ofIntravenous NVG-2089 in Participants with Chronic Inflammatory DemyelinatingPolyneuropathy (CIDP) The purpose of the study is to evaluate the safety of NVG-2089 and to evaluate how well patients respond to this investigational treatment. NVG-2089 is a new drug that is being developed for treating…
Speaker Series Summary Episode 18: In this episode of our Speaker Series, we dive into what a person might feel as a result of GBS residuals and what that person might feel is normal aging, how to tell the difference, and what to do about these symptoms with University of Pennsylvania neurologist Dr. Chafic Karam….
A Phase 3, Randomized, Double-Blinded, Double-Dummy Study Evaluating the Efficacy and Safety of Empasiprubart Versus Intravenous Immunoglobulin in Adults with Multifocal Motor Neuropathy A Study to Assess the Efficacy and Safety of Empasiprubart Versus IVIg in Adults with Multifocal Motor Neuropathy (Empassion) The main purpose of this study is to compare empasiprubart and IVIg in…
On Saturday 22 March 2025 Neuromuscular Diseases Day, Director of International Affairs, Nancy DiSalvo represented the Foundation at an event held simultaneously in 19 Italian cities. Many healthcare and legislative were represented with the participation of authorities, ASP management, expert neurologists, physiotherapists, patients and patient associations. Special thanks to Dr. Marcello Romano and the Center…
At GBS|CIDP Foundation International, we recognize the power of unity and awareness in the fight against rare diseases. On Rare Disease Day, we stand with our global community to shine a light on Guillain-Barré syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN), and related neuropathies. This day is a vital reminder that…
Share Your GBS Journey – Participate in Our Market Research Study for Patients and Care Partners We are excited to announce an upcoming market research study focused on understanding the experiences of individuals affected by Guillain-Barré Syndrome (GBS) and their care partners. The goal of this is to learn more about your GBS journey to…
2025 Multifocal Motor Neuropathy (MMN) Awareness Month It is Multifocal Motor Neuropathy (MMN) Awareness Month, a time to shine a spotlight on Multifocal Motor Neuropathy (MMN) and rally support for those affected by this rare, chronic condition. The GBS|CIDP Foundation International invites you to participate and make a difference! Throughout the month, we’re offering opportunities…
University of Kansas Neuromuscular Review Course January 25, 2025, at the Bellagio Hotel in Las Vegas, Nevada Register now for the Neuromuscular Review Course, presented by leading neurologists specializing in neuromuscular clinical issues related to diagnosing and treating neuromuscular diseases. This program is designed for neurologists, nurse practitioners, physician assistants, trainees, and other HCPs treating…
University of Alabama at Birmingham (UAB) team joins the Birmingham Walk & Roll event The GBS|CIDP Foundation International team was honored to have the University of Alabama at Birmingham (UAB) team join us for the Birmingham Walk & Roll event. Thanks to Foundation staff member, Lori, for her pivotal role in connecting with Eroboghene Ubogu…
The Big Get Together Article was written by: Claire Shaw, CIDP Patient and GAIN Community Member When Rich asked me whether I wanted to say a few words today about the GBS and CIDP community, it made me wonder precisely how long I’ve been a member of the club that no one wants to be…
LaGrippe Research, a market research firm specializing in healthcare, is inviting individuals diagnosed with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), as well as family members who help support/care for a loved one diagnosed with CIDP, to participate in their research study. This will be an in-person usability study, and those who qualify will be invited to…
Educational Webinar Now On-Demand! “What Happens in CIDP and How Does Immunoglobulin Treatment Work?” is now available to watch anytime on-demand. Immunoglobulin (Ig) treatments are a type of therapy that doctors use to help people with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). It’s important for patients to know how these treatments work and to feel comfortable…