Living with Guillain-Barré Syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN), or related conditions can take a toll on both physical and mental well-being. While treatment often focuses on managing neurological symptoms, the impact on mental health is equally important. Join us for this insightful webinar exploring the connection between neurological conditions…
Speaker Series Summary Episode 18: In this episode of our Speaker Series, we dive into what a person might feel as a result of GBS residuals and what that person might feel is normal aging, how to tell the difference, and what to do about these symptoms with University of Pennsylvania neurologist Dr. Chafic Karam….
Speaker Series – Episode 16 Summary In honor of MMN Awareness Month, we talked with Dr. Tom Harbo, a neurologist, Pam Stoikopoulos, an MMN patient, Chrissie Jenkins, a Licensed Social Worker and a member of our Board of Directors, and Richard Sperry, a MMN patients and the Foundation’s Chief Strategy Officer. Relevant Resources Centers of…
Speaker Series – Summary This summary is a recap of an episode from our “Ask the Experts” program, where we talked with Dr. Maureen Su, endocrinologist and a research professor at UCLA. This summary will explore vaccine efficacy and the biology of autoimmunity. Relevant Resources Centers of Excellence All about Vaccines Treatments and Access Portal
Speaker Series – Episode 15 Summary In this Speaker Series episode, we talked with Dr. Brandon Peters, a neurologist, sleep specialist, and researcher at Virginia Mason Franciscan Health in Seattle. This discussion dives into the world of sleep, medications and treatments, lifestyle changes, and other factors that impact sleep. Relevant Resources Sleep Books by Dr….
Speaker Series – Episode 14 Summary In this Speaker Series episode, we talked with Rebecca Aune, Director of Education Programs, and Hayley Mason, Policy Analyst, at the National Organization for Rare Disorders (NORD). This Speaker Series Summary will explore the drug development process and the factors and people that influence it. Resources Learn more about…
Speaker Series – Episode 13 Summary In this Speaker Series episode, we talked with Ms. Kate Costello, a Licensed Nutrition Specialist, Mentor and Wellness coach, about nutrition and how to eat in the face of challenges with our conditions. Resources Learn more about our Patient Registry Explore other Speaker Series Summaries Join a community with…
Speaker Series – Episode 12 Summary In this Speaker Series episode, Dr. Jeffery Allen educates us about the current treatments for GBS, CIDP, and MMN as well as explain current trials and their findings. Dr. Allen is an associate professor of neurology at the University of Minnesota, adjunct faculty at Northwestern University, and the chairman…
Speaker Series – Episode 11 Summary In this Speaker Series episode, we talked with Ms. Michele Dearing, a member of our board of directors and attorney in Washington, DC. Michele is a GBS survivor and currently lives with CIDP. She’s very active in many of our patient programs and advocacy initiatives. Disclaimer: The information provided…
Speaker Series – Episode 10 Summary In this Speaker Series episode, we talked with Dr. Stojan Peric, a researcher and professor, at the University of Belgrade in Serbia and a neurologist at the Clinical Center of Serbia. Catch up on the conversation with Dr. Peric and learn what fatigue is, how it is triggered, and…
Speaker Series – Episode 9 Summary In this episode of our Speaker Series, expert storytellers from Change for Balance gave our patient community tips and tricks to become powerful storytellers. Change for Balance is a strategic communications and production agency with a mission to help change the world. The Change for Balance team is made…
Speaker Series – Episode 8 Summary In this episode of our Speaker Series, we talked with Phil Goglas about the status of our HR 5818 Bill, advocacy strategies, and more! Phil Goglas is a managing partner at the Health and Medical Counsel in Washington, DC, a government relations firm that provides access and guidance to…
Speaker Series – Episode 7 Summary In this episode of our Speaker Series, we dive into the world of science to understand Guillain-Barré Syndrome (GBS) and Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) from our Benson Fellowship Awardees Dr. Elba Pascual Goñi MD, PhD, Ruth Huizinga, PhD. Relevant Resources Centers of Excellence: https://www.gbs-cidp.org/support/centers-of-excellence/ Doctor to Doctor Consult:…
Speaker Series – Episode 6 Summary In this episode of our Speaker Series, we dive into the world of treatments for GBS, CIDP, and MMN as well as understanding them from Dr. Saperstein, a neurologist on our Global Medical Advisory Board. GBS CIDP MMN Anti-Mag Waiting for FDA Approval Relevant Resources Treatment guidelines – https://www.gbs-cidp.org/gbscidp-guidelines-for-treatment-and-diagnosis/…
Speaker Series – Episode 5 Summary In this episode of our Speaker Series, we dive into the world of navigating your health care journey with steps to take, how coverage works, and understanding levels of care with Health Navigator, Amy Stein. Amy is a Licensed Clinical Social Worker and has over 25 years of experience…