At GBS|CIDP Foundation International, we recognize the power of unity and awareness in the fight against rare diseases. On Rare Disease Day, we stand with our global community to shine a light on Guillain-Barré syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN), and related neuropathies. This day is a vital reminder that…
In 1993, Clive Phillips stood at the bottom of the Col du Télégraphe, a mountain pass in the French Alps, watching the world’s top cyclists tackle the climb during the Tour de France. Some 30 years and a Multifocal Motor Neuropathy (MMN) diagnosis later, Clive found himself back in the same spot. This time, he was…
Meet our new Program Manager, Sandra Bermudez Join us in welcoming Sandra Bermudez to the Foundation team! Driven by a deep passion for helping others live fuller and more joyful lives, Sandra Bermúdez is a Psychologist, Health Coach, MBSR-certified practitioner, and a member of the International Association for Health Coaches. She gently guides individuals in developing…
2026 Multifocal Motor Neuropathy (MMN) Awareness Month It is Multifocal Motor Neuropathy (MMN) Awareness Month, a time to shine a spotlight on Multifocal Motor Neuropathy (MMN) and rally support for those affected by this rare, chronic condition. The GBS|CIDP Foundation International invites you to participate and make a difference! Throughout the month, we’re offering opportunities…
Looking for a knowledgeable expert to guide your physical therapy journey with GBS, CIDP or MMN? We are delighted to introduce a 6-Part Balance & Strength series produced by members of the Foundation’s Interdisciplinary Health Committee and patients from the community. These simple exercises, instructed by Physical Therapist, Maria Harris & Occupational Therapist, Kathleen Rocca…
NEW! Coffee Chat Young Adult Virtual Series By: Jocelyn Delgado, OT Student & CIDP Patient This virtual Young Adult Series will be held on Zoom and hosted by Jocelyn Delgado. Navigating young adulthood with GBS or CIDP brings unique challenges, from relationships and work transitions to managing energy, symptoms, and everyday routines. This new six-week…
Principles of Care for CIDP Workshops 2025: Summary and Next Steps To learn more about the Foundation’s ongoing Principles of Care (PoC) initiative, please click here. In October and November 2025, the Principles of Care (PoC) for CIDP project brought together patient advocates and healthcare professionals from across Europe through two in-person workshops designed to…
Step inside the 2025 GBS/CIDP Symposium with a volunteer’s eyes — where research and human connection collided in unforgettable ways. Chris Willard shares how patient stories, caregiver voices, and real-world breakthroughs made the gathering feel more like a movement than a conference. From the launch of the new Interdisciplinary Health Committee to moments of vulnerability…
We’re proud to highlight Lucy, our volunteer from Bulgaria, whose story of resilience continues to inspire. After her own experience with GBS, Lucy has dedicated her time to supporting others in the community and spreading awareness across borders. You can read about the start of her journey in raising awareness here, where she shares how…
In 2025, we established the Interdisciplinary Health Committee for GBS, CIDP, and MMN, a collaborative team of healthcare professionals dedicated to providing comprehensive, patient-centered care for individuals diagnosed with Guillain-Barré Syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), and Multifocal Motor Neuropathy (MMN). The purpose of this committee is to provide guidance and resources beyond clinical…
Recently, we visited the Capitol to raise awareness of our patient community living within the United States, and advocate for our bill H.R. 1143—the Medicare IVIG Access Enhancement Act of 2025. This act would amend Title XVIII of the United States Social Security Act to expand coverage of the in-home administration of intravenous immunoglobulin (IVIG)…
New York City Patient Meet-Up Wonderful patient and caregiver support meeting in New York City this month! A huge thank you to our dedicated volunteer, Edward Gent, MMN patient, for his hard work in creating a meaningful day of connection and community. We are also deeply grateful to Dr. Brannagan, Dr. Lange, and Dr. Rosenthal for their time…
Principles of Care The Problem: A Patchwork of Care for a Complex Disease Chronic inflammatory demyelinating polyneuropathy (CIDP) is a rare and complex neurological disorder that affects patients in Europe and across the globe. However, despite medical advancements, far too many individuals with CIDP experience long, uncertain diagnostic journeys, inconsistent treatment approaches, and fragmented care….
On June 30, 2025, Takeda announced that the U.S. Food and Drug Administration approved GAMMAGARD LIQUID ERC, a 10% ready-to-use liquid immunoglobulin therapy. The product is indicated as a replacement therapy for individuals aged two and older with primary immunodeficiency, and it can be administered either intravenously or subcutaneously. Because it’s ready-to-use, it removes the…
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