This year, we are strengthening our advocacy efforts and putting out a call for a leader in each of the 50 states! These 50 leaders will help us push our goals FORWARD!
Here is what we expect from our advocacy leaders:
- Be informed about all of our advocacy priorities, especially our policy priority of creating a home infusion benefit for CIDP and MMN patients using Medicare.
- Read about our priorities here – https://www.gbs-cidp.org/advocacy/advocacy-priorities/
- Be comfortable speaking to others about the community and the Foundation, including the ability to comfortably speak to staff of Congressional offices.
- Be ready to help others living with GBS, CIDP, and variants such as MMN!
We hope that our 50 to Forward volunteers will help us hold a RECORD NUMBER of meetings during our Month of Action this fall! The Foundation staff will help the volunteers schedule and prepare for the meetings, then it will be up to YOU to lead the meetings and represent the Foundation. Once you submit your application below, Foundation staff will reach out to you for an interview!
In the meantime, hear from some of our current advocacy leaders about their experience doing advocacy for the Foundation and the community.Need more resources? Join our community!