Filter Resources
Benson Clinical Research Fellowship
Claire Bergstrom Johnson My decision to apply for the Benson Fellowship stems from my commitment…
Shape The Future of CIDP Research
Study Title The Chronic Inflammatory Demyelinating Polyneuropathy-Health Index (CIDP-HI): Development of a Patient-Reported Outcome Measure…
Advocating Locally with the Foundation
There's a persistent idea in advocacy that the work happens in Washington, that unless you've…
The NAVIGATE-CIDP Study
The NAVIGATE-CIDP Study, sponsored by argenx and supported by PicnicHealth, is designed to better understand…
Speaker Series: Understanding Vaccines and GBS, CIDP & MMN
Vaccines can be an important topic of discussion for individuals living with GBS, CIDP, MMN,…
Claire, Recipient of the Benson Research Fellowship: One Step Closer to a Cure
For Dr. Claire Bergstrom Johnson, becoming a scientist wasn't just a career choice—it was personal. When her…
Julie Bell’s Clinical Trial Journey: Why She’d Participate Again
In rare disease communities like ours, progress in drug development is often slow, in part…
