At GBS|CIDP Foundation International, we recognize the power of unity and awareness in the fight against rare diseases. On Rare Disease Day, we stand with our global community to shine a light on Guillain-Barré syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN), and related neuropathies. This day is a vital reminder that while these conditions may be rare, the strength of our community is not. Together, we advocate for better research, improved treatments, and a future where no one faces these challenges alone. Join us as we raise our voices and show the world that rare is strong!
Show You Are Rare
Show that You Are Rare by sharing your patient story with the GBS|CIDP Foundation International. Your journey is powerful—it can inspire, educate, and bring hope to others facing similar challenges. By submitting your story to our Patient Story Portal, you help raise awareness and build community. Every voice matters, and yours can make a difference! Share your story today.
Raising Awareness Around the World
Rare Diseases: A Patient Journey Through Research, Care, and Quality of Life
University Hospital Polyclinic “G. Rodolico San Marco” Catania, Italy
Nancy, International Affairs Director, is attending a Rare Disease Day event on Thursday, February 26th, 2026, organized by patient advocacy associations to strengthen collaboration and communication within the healthcare community. The meeting brings together healthcare professionals, patients, and caregivers to foster open dialogue, explore multidisciplinary care networks, and improve dedicated treatment pathways. By enhancing the connection between research and clinical care and reinforcing the doctor–patient partnership, the event aims to promote more coordinated, continuous care between hospital and community settings — ultimately improving quality of life for people living with rare diseases and their families.
Spotlight
