Research Surveys and Studies
It’s been proven that research is more successful when patients give their input early and often! By taking surveys, participating in focus groups, or testing devices that are being made, you are helping to ensure researchers create something that actually matters to the community. The more people who participate, the better! Check out the opportunities below and help researchers stay on the right track with their work in GBS, CIDP, or variants such as MMN.
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Your Voice Matters- Take part in our research!
Your Voice Matters- Take part in our research! If you have chronic inflammatory demyelinating polyneuropathy (CIDP), you may be eligible to take part in our interview. RTI Health Solutions (RTI-HS), a non-profit research organization, is recruiting people to participate in an interview to help researchers understand the aspects of treatment that matter to patients with…
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Study on the Economic Impacts of GBS
Study on the Economic Impacts of GBS Magnolia Innovation, an independent research company, is seeking individuals and care partners for individuals who have been diagnosed with Guillain-Barre syndrome (GBS) to participate in a web survey to share their personal experiences with GBS. WE WOULD LOVE TO HEAR FROM YOU IF: If you are interested, please…
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Help Develop a meaningful MMN-Specific Measure
Do you have Multifocal Motor Neuropathy (MMN)? Clinical Outcomes Solutions, a healthcare research company, is conducting research about the experience of living with MMN. We are looking for adults with MMN to help fine-tune an MMN-specific patient reported outcome measure (PRO) that can be used in clinical trials and clinical settings. The newly designed PRO…
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Participate in Our Market Research Study for GBS Patients and Care Partners
Share Your GBS Journey – Participate in Our Market Research Study for Patients and Care Partners We are excited to announce an upcoming market research study focused on understanding the experiences of individuals affected by Guillain-Barré Syndrome (GBS) and their care partners. The goal of this is to learn more about your GBS journey to…
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Evidera Steroid Survey for CIDP Patients
We are sharing this research opportunity on behalf of Evidera, an independent healthcare research company, on a study examining side effects associated with steroid medications. Evidera’s team is hoping to gain more insight into these side effects and how they impact one’s quality of life by conducting one-on-one interviews with individuals with CIDP, who have…
