Research News

How You Can Manage Fatigue

Submitted by Dr. Gareth Parry, Global Medical Advisory Board Member and GBS Support Group NZ Trust An online activity-focused coaching programme helps reduce fatigue in people after Guillain-Barré Syndrome 60-80% of people with Guillain-Barré Syndrome (GBS) report persistent fatigue which significantly limits everyday functioning despite good recovery of strength. Dr Suzie Mudge who is a…

Research Article: Pathogenesis of GBS based on mice strains

Development of a major histocompatibility complex class II conditional knockout mouse to study cell-specific and time-dependent adaptive immune responses in peripheral nerves Published by: Eroboghene E. Ubogu MD, Jeremy A. Conner BS, Yimin Wang PhD, Dinesh Yadav PhD, Thomas L. Saunders PhD Read the research article here: https://onlinelibrary.wiley.com/doi/10.1002/mus.28193

Inspiring the Next Generation of Research at the GBS|CIDP Foundation International Patient Symposium  

As part of the 2023 International Patient Symposium, the Foundation was thrilled to welcome seven young medical professionals – ranging from those in their residency to those finishing their Ph.D. – to join the conference and learn from our Global Medical Advisory Board and from the patient community. These young professionals attended sessions, facilitated Q&A’s,…

Research Poster Opportunity for GBS, CIDP, MMN Patient Symposium

We Invite You to Participate! As valued members of our medical community, we would like to inform you and your colleagues in training, residents, and fellows of a special opportunity to participate in the 2023 GBS|CIDP Foundation Patient Symposium, October 5-7 in Alexandria, VA. Poster Request Drs. Jeffrey Allen and Bart Jacobs, as Chair and…

A one-year Research Update from the 2022 Benson Fellowship Awardee

A one-year Research Update from the 2022 Benson Fellowship Awardee, Elba Pascual-Goñi MD, PhD.   Our 2022 Benson Fellow, Dr. Pascual-Goñi, carries out patient care and translational research tasks in the field of inflammatory neuropathies in the Neuromuscular Diseases Unit of the Hospital de la Santa Creu i Sant Pau (Barcelona). She is responsible for…

Children with rapid-onset paralysis: is it GBS?

Children with rapid-onset paralysis: is it GBS? by Patricia Blomkwist An interesting article* was published in the “European Journal of Neurology” about a study in children. Prof. Bart Jacobs (Erasmus Medical Center, Rotterdam, The Netherlands) was one of the authors. He wondered why, contrary to expectations, some children diagnosed with GBS did not recover well….

Propionate Exerts Neuroprotective and Neuroregenerative Effects in the Peripheral Nervous System

Propionate Exerts Neuroprotective and Neuroregenerative Effects in the Peripheral Nervous System A  recent study from Ruhr-University Bochum, Germany, was able to demonstrate that the short-chain fatty acid, propionate, has a protective and regenerative effect on the peripheral nervous system in cell culture and in animal experiments. Dr. Thomas Grüter who headed the cell culture and…

An Update from the International Guillain-Barre Study (IGOS) by Dr. Bart Jacobs

The IGOS-1000 cohort has now been tested for the main preceding infections and is currently tested for antibodies extensively. We have also recently finalized a study in IGOS on the association between GBS and SARS-CoV-2 during the first 3 months of the pandemic. In my view this study shows the importance of having an ongoing…

2018 GBS|CIDP Foundation Research Grant Recipient Publishes Update in Journal of Neurology, Neurosurgery & Psychology

CSF sphingomyelin: a new biomarker of demyelination in the diagnosis and management of CIDP and GBS Principal Investigators: Luana Benedetti, MD, PhD  and  Lucilla Nobbio, PhD, University of Genova, ITALY CIDP and GBS are immune-mediated neuropathies characterized by strong heterogeneity in terms of clinical manifestations, prognosis and response to treatment. They are treatable diseases and early…

Foundation Hosted Patient Listening Session on Guillain-Barre Syndrome with The FDA

On September 29, 2020, the GBS|CIDP Foundation International organized a patient-led listening session on Guillain-Barre Syndrome (GBS). More than 30 members of various branches within the FDA logged on to the virtual meeting to hear about patients’ experiences with GBS. The FDA’s role was to listen and learn about what life is like during and…

Your Donations in Action

In 2016 The GBS|CIDP Foundation awarded a research grant to Eduardo Nobile-Orazio, MD, PhD, FAAN, Professor of Neurology Neuromuscular and Neuroimmunology Service at Milan University. Dr. Nobile-Orazio’s 2016 study titled: An Italian Multicenter Network for the diagnosis and therapy of chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) and of its variants, contributed to the 2019 article: Risk factors for chronic inflammatory demyelinating polyradiculoneuropathy (CIDP): antecedent events, lifestyle and dietary habits. Data from the Italian CIDP Database., published by the EAN (European Academy of Neurology). Update: GBS|CIDP Foundation Research 2016 Grant Recipient, Dr. Eduardo Nobil-Orazio, published in Journal of Neurology, Journal of Neuroimmunology, and Wiley Online Library, and EAN.

INCbase

INCbase Update  Chronic inflammatory demyelinating polyneuropathy (CIDP) is a rare disorder that affects different people in different ways. The symptoms, treatment response, and disease course may vary from person to person, or even in the same person at different stages of the disease. As previously reported in 2017, INCbase is a study that intends to…