Advocacy Action Center

Take Action Now!

Be Your Own Best Advocate! Whether you are a patient, caregiver, friend, or family member, we encourage you to Use Your Voice and help us tell Senators and Congresspersons about what is important to the GBS, CIDP and variants community. To become an advocate, please complete the form below, which will then become a letter to your legislators. Someone from the Foundation will then make sure that your letter gets to the right people! If you have any questions or need assistance, please email or call 610-667-0131.

  • Please complete if would like to receive a copy of your letter via email.
  • Some of our asks only apply to Senators, while others apply only to Representatives. The Advocacy Manager at the Foundation will make sure that your letter makes the right asks to the right people. If you have any questions, call Chelsey at 610-667-0131.
  • Share Your Story

    Please personalize your story to include.
  • Share a detail about the diagnosis process.
  • Share a detail about the treatment you received and whether you still receive treatment or experience side-effects.
  • Did you have trouble with insurance or financial issues as a result of treatment? Share that here. Is there a different emotional detail of your story that you think is impactful? Summarize it here.
  • Closing Sentence
  • This field is for validation purposes and should be left unchanged.