Cindy Chen, MSW, LCSW
Cindy is a social worker and patient advocate whose leadership in the rare disease and disabled community is shaped by both professional expertise and lived experience. Diagnosed with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) in 2019, she has become a dedicated voice for individuals affected by GBS, CIDP, MMN, and related conditions, working to strengthen support, awareness, and connection across the community.
Cindy earned her Master of Social Work from the University of Southern California (USC) and has long been drawn to helping others. She brings together her professional background and personal experience as a patient to support efforts that promote awareness, education, accessibility, and community for those affected by rare neurological conditions and the broader disabled community.
She currently serves on the GBS | CIDP Foundation International Board of Directors and is involved with the Los Angeles Chapter, where she contributes to local efforts that bring people together. Through support groups, educational programs, awareness activities, and events like the Los Angeles Walk & Roll, she helps create spaces where patients, caregivers, and families can connect and feel supported. She especially values being able to connect with newly diagnosed patients and remind them that they are not alone.
Living with CIDP has given Cindy a deeper understanding of the challenges that come with navigating a chronic condition and disability. She recognizes the uncertainty and isolation many people experience, as well as the importance of community and shared support. She hopes to help ensure that individuals and families affected by these conditions have access to reliable information, compassionate support, and a sense of belonging.
Cindy believes that while a diagnosis can change the course of a person’s life, it does not define who they are. Through her involvement and advocacy, she hopes to contribute to a future where patients and caregivers feel supported, informed, and connected.