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Betty Soliven, MD

Betty Soliven, MD

Betty Soliven, MD

Betty Soliven, MD

The University of Chicago

The University of Chicago

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Thank you, Philadelphia, for another unforgettable Walk & Roll this past Saturday! 💙💚

A special shoutout to our Walk & Roll Manager, Zach, whose passion, dedication, and heart helped make this event so meaningful—especially here in the Foundation’s hometown of Philly.

And thank you to our incredible staff, volunteers, sponsors, and everyone who showed up, walked, rolled, supported, and raised awareness with us. Because of you, this event continues to grow and bring our community together in such a powerful way.

Philadelphia—we can’t wait to do it again next year! Stay tuned for more photos!

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Open post by gbscidpfoundation with ID 17909819964420537

Thank you, Philadelphia, for another unforgettable Walk & Roll this past Saturday! 💙💚

A special shoutout to our Walk & Roll Manager, Zach, whose passion, dedication, and heart helped make this event so meaningful—especially here in the Foundation’s hometown of Philly.

And thank you to our incredible staff, volunteers, sponsors, and everyone who showed up, walked, rolled, supported, and raised awareness with us. Because of you, this event continues to grow and bring our community together in such a powerful way.

Philadelphia—we can’t wait to do it again next year! Stay tuned for more photos!

You have the power to shape the future of care for CIDP patients across Europe!
Part of the Principles of Care for CIDP initiative, we invite you to share your experiences as a CIDP patient, caregiver, or health care professional through a virtual discussion. Your insights can help improve care standards, advocacy efforts, and inform health policy discussions. To learn more and register, visit bit.ly/499837h

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Open post by gbscidpfoundation with ID 18120471466786766

You have the power to shape the future of care for CIDP patients across Europe!
Part of the Principles of Care for CIDP initiative, we invite you to share your experiences as a CIDP patient, caregiver, or health care professional through a virtual discussion. Your insights can help improve care standards, advocacy efforts, and inform health policy discussions. To learn more and register, visit bit.ly/499837h

Durante una semana, la Ciudad de México se iluminó de azul y verde para crear conciencia sobre GBS, CIDP que impactan la vida de miles de personas y familias. 💙💚

El Ángel de la Independencia, La Diana Cazadora, Monumento a la Revolución y los edificios del centro de la ciudad se unieron a esta iniciativa para recordarle a nuestra comunidad que NO están solos.

Además, algunos pacientes y sus familias se reunieron en el Ángel de la Independencia para compartir un momento de unión, apoyo y visibilidad para nuestra comunidad. ✨

Gracias a todos los que hicieron posible esta iluminación y a quienes continúan apoyando a nuestra comunidad día con día. 💙💚

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Open post by gbscidpfoundation with ID 18115959034882468

Durante una semana, la Ciudad de México se iluminó de azul y verde para crear conciencia sobre GBS, CIDP que impactan la vida de miles de personas y familias. 💙💚

El Ángel de la Independencia, La Diana Cazadora, Monumento a la Revolución y los edificios del centro de la ciudad se unieron a esta iniciativa para recordarle a nuestra comunidad que NO están solos.

Además, algunos pacientes y sus familias se reunieron en el Ángel de la Independencia para compartir un momento de unión, apoyo y visibilidad para nuestra comunidad. ✨

Gracias a todos los que hicieron posible esta iluminación y a quienes continúan apoyando a nuestra comunidad día con día. 💙💚

Individuals with late-onset neuromuscular diseases (LONDs) often wait years for a diagnosis. The new LOND Clinical Decision Tool supports earlier recognition by helping first‑line healthcare providers recognize key symptoms sooner and guide appropriate and timely referrals.

Learn more and download the tool: WhyBehindWeakness.org

#WhyBehindYourWeakness #NeuromuscularAwarness #PatientAdvocacy #ANF #LONDC #LONDs

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Open post by gbscidpfoundation with ID 17990034362799005

Individuals with late-onset neuromuscular diseases (LONDs) often wait years for a diagnosis. The new LOND Clinical Decision Tool supports earlier recognition by helping first‑line healthcare providers recognize key symptoms sooner and guide appropriate and timely referrals.

Learn more and download the tool: WhyBehindWeakness.org

#WhyBehindYourWeakness #NeuromuscularAwarness #PatientAdvocacy #ANF #LONDC #LONDs

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