Events List
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Speaker Series: Estrangement & Isolation Chronic Illness
Description for Speaker Series: Estrangement & Isolation Chronic Illness
Living with a chronic illness can affect much more than physical healthβit can also impact relationships, emotional well-being, and a sense of connection with others. Feelings of isolation, loneliness, and even estrangement from family, friends, workplaces, or social communities can be common yet are unspoken experiences for individuals living with GBS, CIDP, MMN, and related conditions.
Join us for an important conversation exploring the emotional and social impact of chronic illness. This session will discuss why isolation, and relationship strain may occur, how chronic illness can change personal identities and support systems, and practical strategies for building connection, strengthening support networks, and prioritizing mental and emotional well-being. Whether you are living with a condition, caring for a loved one, or supporting someone on their journey, this discussion aims to provide understanding, validation, and tools for navigating these challenges.
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Speaker Series: Understanding Vaccines and GBS, CIDP, and MMN
Description for Speaker Series: Understanding Vaccines and GBS, CIDP, and MMN
Vaccines can be an important topic of discussion for individuals living with GBS, CIDP, MMN, often raising questions about safety, timing, recommendations, and individual risk considerations. Navigating vaccine-related information can sometimes feel overwhelming.
Join us for an educational discussion exploring vaccines in the context of GBS, CIDP, MMN, and related conditions. This session will review general vaccine principles, address common questions and misconceptions, discuss factors that may influence vaccine decisions, and highlight the importance of individualized conversations with healthcare providers. Participants will gain a better understanding of available information and considerations that may support informed decision-making.
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