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gbscidpfoundation

1,179

Our 2025 Benson Fellow, Dr. Claire Bergstrom Johnson, was inspired to pursue research after her twin sister`s diagnosis of CIDP. Today, her groundbreaking work is bringing new hope to the inflammatory neuropathy community.

Read about Claire`s inspiring journey and the progress she`s making toward better diagnostics and treatments by visiting our news section on the website.

#cidpwarrior #cidpawareness #guillainbarresyndrome #cidp #neuropathy

8 0

Open post by gbscidpfoundation with ID 18107807896860370

Our 2025 Benson Fellow, Dr. Claire Bergstrom Johnson, was inspired to pursue research after her twin sister's diagnosis of CIDP. Today, her groundbreaking work is bringing new hope to the inflammatory neuropathy community.

Read about Claire's inspiring journey and the progress she's making toward better diagnostics and treatments by visiting our news section on the website.

#cidpwarrior #cidpawareness #guillainbarresyndrome #cidp #neuropathy

Lingering pain. Fatigue. Weakness. Sensory changes.

For many living with GBS, CIDP & MMN, the journey doesn`t end after diagnosis — and it`s time we talk about it.

This is just one of many expert-led sessions at the 2026 European Patient Conference in Milan.

Join Dr. Helmarr Lehmann, Dr. Tom Harbo, and Dr. Bart Jacobs for "Residual Symptoms: Understanding Lingering Struggles," where they`ll discuss the lasting challenges many patients continue to face and what we know today.

📍 Sheraton Milano San Siro
🗓️ Saturday, October 10, 2026 | 9:00 AM

Don`t miss this opportunity to learn from leading experts and connect with the community.

Link in bio to register. ⬆️

30 2

Open post by gbscidpfoundation with ID 17937082233094893

Lingering pain. Fatigue. Weakness. Sensory changes.

For many living with GBS, CIDP & MMN, the journey doesn't end after diagnosis — and it's time we talk about it.

This is just one of many expert-led sessions at the 2026 European Patient Conference in Milan.

Join Dr. Helmarr Lehmann, Dr. Tom Harbo, and Dr. Bart Jacobs for "Residual Symptoms: Understanding Lingering Struggles," where they'll discuss the lasting challenges many patients continue to face and what we know today.

📍 Sheraton Milano San Siro
🗓️ Saturday, October 10, 2026 | 9:00 AM

Don't miss this opportunity to learn from leading experts and connect with the community.

Link in bio to register. ⬆️

A heartfelt thank you to everyone who helped make our GBS|CIDP & MMN Community Day in Seattle a success!

We are grateful to our incredible presenters, Dr. Madeline Singer and Dr. Michael Weiss, for sharing their knowledge, insights, and support with our community.

A special thank you to @threetreesyoga for bringing mindfulness and wellness to the day through a meaningful yoga session for patients and families.

Events like this create opportunities for connection, education, and support for those living with GBS, CIDP, MMN, and related conditions. Thank you to everyone who joined us and helped strengthen our community!

31 0

Open post by gbscidpfoundation with ID 18059104622784431

A heartfelt thank you to everyone who helped make our GBS|CIDP & MMN Community Day in Seattle a success!

We are grateful to our incredible presenters, Dr. Madeline Singer and Dr. Michael Weiss, for sharing their knowledge, insights, and support with our community.

A special thank you to @threetreesyoga for bringing mindfulness and wellness to the day through a meaningful yoga session for patients and families.

Events like this create opportunities for connection, education, and support for those living with GBS, CIDP, MMN, and related conditions. Thank you to everyone who joined us and helped strengthen our community!

"I withdrew from a clinical trial… but I’d do it again."

After 31 years living with CIDP, Julie Bell knows the importance of finding treatments that work. When she enrolled in a clinical trial, she hoped her participation could help advance future options for the CIDP community.

Although she ultimately withdrew from the study after consulting with her physician, Julie believes clinical trials remain an important part of moving research forward.

In our latest patient story, Julie shares her experience, what she learned, and why she would still participate again.

📖 Read Julie’s full story through the link in our bio.

#CIDP #ClinicalTrials #RareDiseaseResearch #PatientStories #Neuropathy #GBSCIDPFoundation

50 4

Open post by gbscidpfoundation with ID 17948821479235159

"I withdrew from a clinical trial… but I’d do it again."

After 31 years living with CIDP, Julie Bell knows the importance of finding treatments that work. When she enrolled in a clinical trial, she hoped her participation could help advance future options for the CIDP community.

Although she ultimately withdrew from the study after consulting with her physician, Julie believes clinical trials remain an important part of moving research forward.

In our latest patient story, Julie shares her experience, what she learned, and why she would still participate again.

📖 Read Julie’s full story through the link in our bio.

#CIDP #ClinicalTrials #RareDiseaseResearch #PatientStories #Neuropathy #GBSCIDPFoundation

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