Coffee Chat: Finding Connection When Facing Your Condition Alone

Event Description

About this Event

Living with GBS, CIDP, or MMN can bring unique challenges — and navigating life without a spouse or partner can sometimes make those challenges feel even greater. Whether you are single, divorced, widowed, or managing your journey independently, this Coffee Chat offers a supportive space to connect with others who understand.

Join Chrissie Jenkins, MSW, LISW-CP, Foundation Board Member, and Merrilyn Macurak, GBS patient, for an open conversation about finding support, building connections, advocating for yourself, and managing the challenges and successes of living with a rare neuromuscular condition on your own.

Who Should Attend?
This Coffee Chat is for individuals living with GBS, CIDP, MMN, or related conditions who are navigating their journey without a spouse or partner — including those who are single, divorced, widowed, separated, or simply managing life independently.

Why Attend?

• Connect with others who understand the unique experience of facing a chronic illness independently
• Share experiences, challenges, and strategies for building a strong support system
• Learn ways to advocate for yourself and manage daily life with confidence
• Gain encouragement and perspective from fellow patients and others who understand

Come share your experiences, ask questions, and connect with others who know that while you may be going it alone, you don’t have to face it alone.