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Brenda Perales

Brenda Perales

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The GBS | CIDP Foundation brings patients, caregivers, and medical professionals together with trusted care, helpful tools, and support.

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Durante una semana, la Ciudad de México se iluminó de azul y verde para crear conciencia sobre GBS, CIDP que impactan la vida de miles de personas y familias. 💙💚

El Ángel de la Independencia, La Diana Cazadora, Monumento a la Revolución y los edificios del centro de la ciudad se unieron a esta iniciativa para recordarle a nuestra comunidad que NO están solos.

Además, algunos pacientes y sus familias se reunieron en el Ángel de la Independencia para compartir un momento de unión, apoyo y visibilidad para nuestra comunidad. ✨

Gracias a todos los que hicieron posible esta iluminación y a quienes continúan apoyando a nuestra comunidad día con día. 💙💚

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Open post by gbscidpfoundation with ID 18115959034882468

Durante una semana, la Ciudad de México se iluminó de azul y verde para crear conciencia sobre GBS, CIDP que impactan la vida de miles de personas y familias. 💙💚

El Ángel de la Independencia, La Diana Cazadora, Monumento a la Revolución y los edificios del centro de la ciudad se unieron a esta iniciativa para recordarle a nuestra comunidad que NO están solos.

Además, algunos pacientes y sus familias se reunieron en el Ángel de la Independencia para compartir un momento de unión, apoyo y visibilidad para nuestra comunidad. ✨

Gracias a todos los que hicieron posible esta iluminación y a quienes continúan apoyando a nuestra comunidad día con día. 💙💚

Individuals with late-onset neuromuscular diseases (LONDs) often wait years for a diagnosis. The new LOND Clinical Decision Tool supports earlier recognition by helping first‑line healthcare providers recognize key symptoms sooner and guide appropriate and timely referrals.

Learn more and download the tool: WhyBehindWeakness.org

#WhyBehindYourWeakness #NeuromuscularAwarness #PatientAdvocacy #ANF #LONDC #LONDs

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Open post by gbscidpfoundation with ID 17990034362799005

Individuals with late-onset neuromuscular diseases (LONDs) often wait years for a diagnosis. The new LOND Clinical Decision Tool supports earlier recognition by helping first‑line healthcare providers recognize key symptoms sooner and guide appropriate and timely referrals.

Learn more and download the tool: WhyBehindWeakness.org

#WhyBehindYourWeakness #NeuromuscularAwarness #PatientAdvocacy #ANF #LONDC #LONDs

Join us THIS Saturday at the Philadelphia Walk & Roll and be part of something bigger.

Together, we Walk & Roll to raise awareness for GBS, CIDP, and MMN and support research that helps move us toward better treatments and brighter futures.

Bring your energy, invite your friends and family, and help us make an impact.

We’ll see you in Philly this Saturday—let’s make awareness impossible to miss.

Register by clicking the link in our bio.
#guillainbarresyndrome #CIDP #philadelphiaevents #nonprofit #multifocalmotorneuropathy #raredisease #rarediseaseawareness #abcnews #phillynews

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Open post by gbscidpfoundation with ID 18121942342665785

Join us THIS Saturday at the Philadelphia Walk & Roll and be part of something bigger.

Together, we Walk & Roll to raise awareness for GBS, CIDP, and MMN and support research that helps move us toward better treatments and brighter futures.

Bring your energy, invite your friends and family, and help us make an impact.

We’ll see you in Philly this Saturday—let’s make awareness impossible to miss.

Register by clicking the link in our bio.
#guillainbarresyndrome #CIDP #philadelphiaevents #nonprofit #multifocalmotorneuropathy #raredisease #rarediseaseawareness #abcnews #phillynews

We’d like to extend a note of gratitude to Nancy Di Salvo, Director of International Affairs, for representing the foundation at this year`s #ECRD26 conference.

Nancy met with our Allied partners from Germany and Romania and presented our Principles of Care for CIDP poster. The poster was created in collaboration with Epodin and @patvocates to depict a 4-year-long project aimed at co-developing a patient-centered European framework to guide advocacy, clinical practice, and policy.

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Open post by gbscidpfoundation with ID 18011277368716955

We’d like to extend a note of gratitude to Nancy Di Salvo, Director of International Affairs, for representing the foundation at this year's #ECRD26 conference.

Nancy met with our Allied partners from Germany and Romania and presented our Principles of Care for CIDP poster. The poster was created in collaboration with Epodin and @patvocates to depict a 4-year-long project aimed at co-developing a patient-centered European framework to guide advocacy, clinical practice, and policy.

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