Skip to Main Content
Skip to Main Navigation
Skip to Footer

Community Forum
Ask the Health Navigator
Contact Us

GBS | CIDP Foundation International, home page

- About Us
- Partners & Committees
- News
  - Research News
  - Newsletters
- GBS
  - Intro to Guillain-Barré Syndrome
- CIDP
  - Intro to Chronic Inflammatory Demyelinating Polyneuropathy
- MMN
  - Intro to Multifocal Motor Neuropathy (MMN)
- Related Conditions
  - Intro to Related Conditions
- Looking for resources tailored for you? Get started here:
- Education Center
  Explore trusted tools and resources to help patients, caregivers, and medical professionals better understand and manage GBS, CIDP, and MMN.
- Ask the Health Navigator
  Get personalized support from our Health Navigator for insurance questions, resources, and care planning tailored to your unique patient journey.
- Events Calendar
  Join us to connect, inform, and inspire. From local chapter meetings to educational programs and awareness initiatives, we love coming together as a community.
- Patient Stories
  Hear lived experiences from patients, caregivers, and advocates living with GBS, CIDP, and MMN. Stories of strength, recovery, and resilience.
- Treatments & Access
  Explore the access portal, and learn about treatment options, medication support, and patient assistance programs available through our pharmaceutical partners.
- Life After Diagnosis
- Volunteer
- Advocacy
  - Overview
  - Advocacy Resources
- Fundraise
  - DIY Fundraise
  - Find a Walk & Roll
- Give
- Connect
  - Community Forum
  - Care Partner Community
- Events

GBS | CIDP Foundation International, home page

Search this Site

When autocomplete results are available use up and down arrows to review and enter to go to the desired page. Touch device users, explore by touch or with swipe gestures.

Community Forum
Ask the Health Navigator
Contact Us

Donate

Search this Site

Home
Team Members
Diana Castro, MD

Diana Castro, MD

Neurology and Neuromuscular Care Center

Footer

The GBS | CIDP Foundation brings patients, caregivers, and medical professionals together with trusted care, helpful tools, and support.

Sign up for our newsletter and never miss a resource, research update, event, or opportunity to make a difference.

Enter your email address(Required)

Δ

gbscidpfoundation

1,149

Individuals with late-onset neuromuscular diseases (LONDs) often wait years for a diagnosis. The new LOND Clinical Decision Tool supports earlier recognition by helping first‑line healthcare providers recognize key symptoms sooner and guide appropriate and timely referrals.

Learn more and download the tool: WhyBehindWeakness.org

#WhyBehindYourWeakness #NeuromuscularAwarness #PatientAdvocacy #ANF #LONDC #LONDs

9 0

Open post by gbscidpfoundation with ID 17990034362799005

Individuals with late-onset neuromuscular diseases (LONDs) often wait years for a diagnosis. The new LOND Clinical Decision Tool supports earlier recognition by helping first‑line healthcare providers recognize key symptoms sooner and guide appropriate and timely referrals.

Learn more and download the tool: WhyBehindWeakness.org

#WhyBehindYourWeakness #NeuromuscularAwarness #PatientAdvocacy #ANF #LONDC #LONDs

Join us THIS Saturday at the Philadelphia Walk & Roll and be part of something bigger.

Together, we Walk & Roll to raise awareness for GBS, CIDP, and MMN and support research that helps move us toward better treatments and brighter futures.

Bring your energy, invite your friends and family, and help us make an impact.

We’ll see you in Philly this Saturday—let’s make awareness impossible to miss.

Register by clicking the link in our bio.
#guillainbarresyndrome #CIDP #philadelphiaevents #nonprofit #multifocalmotorneuropathy #raredisease #rarediseaseawareness #abcnews #phillynews

42 0

Open post by gbscidpfoundation with ID 18121942342665785

Join us THIS Saturday at the Philadelphia Walk & Roll and be part of something bigger.

Together, we Walk & Roll to raise awareness for GBS, CIDP, and MMN and support research that helps move us toward better treatments and brighter futures.

Bring your energy, invite your friends and family, and help us make an impact.

We’ll see you in Philly this Saturday—let’s make awareness impossible to miss.

Register by clicking the link in our bio.
#guillainbarresyndrome #CIDP #philadelphiaevents #nonprofit #multifocalmotorneuropathy #raredisease #rarediseaseawareness #abcnews #phillynews

We’d like to extend a note of gratitude to Nancy Di Salvo, Director of International Affairs, for representing the foundation at this year`s #ECRD26 conference.

Nancy met with our Allied partners from Germany and Romania and presented our Principles of Care for CIDP poster. The poster was created in collaboration with Epodin and @patvocates to depict a 4-year-long project aimed at co-developing a patient-centered European framework to guide advocacy, clinical practice, and policy.

25 1

Open post by gbscidpfoundation with ID 18011277368716955

We’d like to extend a note of gratitude to Nancy Di Salvo, Director of International Affairs, for representing the foundation at this year's #ECRD26 conference.

Nancy met with our Allied partners from Germany and Romania and presented our Principles of Care for CIDP poster. The poster was created in collaboration with Epodin and @patvocates to depict a 4-year-long project aimed at co-developing a patient-centered European framework to guide advocacy, clinical practice, and policy.

This #WorldBicycleDay, we’re celebrating Miles for GBS and honoring his GBS journey as he takes on Mount Ventoux in France around August 24, 2026—an “epic” 26 km (16.2-mile) climb to raise awareness for GBS and support the GBS Patient Assistance Fund.

Like so many living with GBS, Miles knows recovery is rarely a straight path.

“You can only do it one day at a time,” he said. “And some days, you need to stop and rest.”

21 1

Open post by gbscidpfoundation with ID 18100978129874026

This #WorldBicycleDay, we’re celebrating Miles for GBS and honoring his GBS journey as he takes on Mount Ventoux in France around August 24, 2026—an “epic” 26 km (16.2-mile) climb to raise awareness for GBS and support the GBS Patient Assistance Fund.

Like so many living with GBS, Miles knows recovery is rarely a straight path.

“You can only do it one day at a time,” he said. “And some days, you need to stop and rest.”

Follow on Instagram

Copyright Information

Sitemap

Social Media

LinkedIn
Youtube
Facebook
Instagram
Tiktok

✕

Search for: