Publications

Foundation Newsletters:

• Spring-2013-Newsletter
• Winter 2012 Newsletter Part 1/Part 2/Part 3/Part 4
• Fall 2012 Newsletter
• Spring 2012
• Summer 2012 Medical Issue
• Fall/Winter 2011
• Summer 2011

Foundation Publications:

• GBS/CIDP Brochure
• GBS Brochure
• CIDP Brochure
• Miller Fisher Syndrome ;
• Multifocal Motor Neuropathy (MMN) ;
• An Overview For The Layperson ;
• CIDP Booklet ;
• A Handbook For Caregivers ;
• Guidelines for Physical and Occupational Therapy .
• Caring For A Child With GBS or CIDP ;
• Teen & Young Adult Handbook ;
• GBS: An Acute Care Guide For Medical Professionals ;
• Childhood CIDP ;

Articles:

• The PATH Study – CIDP Treatment with Subcutaneous Immunoglobulin
  • CSL Behring is currently recruiting CIDP patients for a clinical trial. Click on the above link to access the detailed document.

• Neuromuscular Disorders:
  • “Treatment of Chronic Inflammatory Demyelinating Polyneuropathy”
  • Eliza E. Robertson, Md, PhD and Peter D. Donofrio, MD;
• European Journal of Neurology:
  • What constitutes a ‘Good’ recovery outcome in post-acute Guillain-Barré syndrome?
  • Results of a Nationwide Survey of post-acute GBS sufferers in the United Kingdom
• European Journal of Neurology:
  • European Federation of Neurological Societies/Peripheral Nerve Society Guideline on Management Of Chronic Inflammatory Demyelinating Polyradiculoneuropathy

• Tregitope Funding:
  • “Tregitope Funding Tops $3.4 Million”