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Chrissie Jenkins, LISW-CP

Chrissie Jenkins, LISW-CP

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The GBS | CIDP Foundation brings patients, caregivers, and medical professionals together with trusted care, helpful tools, and support.

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"I withdrew from a clinical trial… but I’d do it again."

After 31 years living with CIDP, Julie Bell knows the importance of finding treatments that work. When she enrolled in a clinical trial, she hoped her participation could help advance future options for the CIDP community.

Although she ultimately withdrew from the study after consulting with her physician, Julie believes clinical trials remain an important part of moving research forward.

In our latest patient story, Julie shares her experience, what she learned, and why she would still participate again.

📖 Read Julie’s full story through the link in our bio.

#CIDP #ClinicalTrials #RareDiseaseResearch #PatientStories #Neuropathy #GBSCIDPFoundation

35 3

Open post by gbscidpfoundation with ID 17948821479235159

"I withdrew from a clinical trial… but I’d do it again."

After 31 years living with CIDP, Julie Bell knows the importance of finding treatments that work. When she enrolled in a clinical trial, she hoped her participation could help advance future options for the CIDP community.

Although she ultimately withdrew from the study after consulting with her physician, Julie believes clinical trials remain an important part of moving research forward.

In our latest patient story, Julie shares her experience, what she learned, and why she would still participate again.

📖 Read Julie’s full story through the link in our bio.

#CIDP #ClinicalTrials #RareDiseaseResearch #PatientStories #Neuropathy #GBSCIDPFoundation

This week, Darlene, Director of Marketing, and Holly, Director of Development, are attending the Bridge to Integrated Marketing & Fundraising Conference in National Harbor, Maryland, connecting with nonprofit professionals and exploring new ideas to strengthen our mission and better serve the GBS, CIDP, and MMN community.

If you`re attending, be sure to say hello!

#BridgeConference #NonprofitMarketing #Fundraising #GBSCIDPFoundation

19 1

Open post by gbscidpfoundation with ID 18100572823953836

This week, Darlene, Director of Marketing, and Holly, Director of Development, are attending the Bridge to Integrated Marketing & Fundraising Conference in National Harbor, Maryland, connecting with nonprofit professionals and exploring new ideas to strengthen our mission and better serve the GBS, CIDP, and MMN community.

If you're attending, be sure to say hello!

#BridgeConference #NonprofitMarketing #Fundraising #GBSCIDPFoundation

When living with GBS|CIDP, MMN, or a related condition, having the right questions ready for your next doctor’s appointment is key to getting the care and support you need. Here are a few important questions to consider asking:

Find out more questions by clicking the link in our bio. #cidpawareness #cidpwarrior #guillainbarresyndrome #guillainbarresurvivor #guillainbarrésyndrome #multifocalmotorneuropathy #guillainbarré #healthcare #raredisease

22 1

Open post by gbscidpfoundation with ID 17958521432984612

When living with GBS|CIDP, MMN, or a related condition, having the right questions ready for your next doctor’s appointment is key to getting the care and support you need. Here are a few important questions to consider asking:

Find out more questions by clicking the link in our bio. #cidpawareness #cidpwarrior #guillainbarresyndrome #guillainbarresurvivor #guillainbarrésyndrome #multifocalmotorneuropathy #guillainbarré #healthcare #raredisease

Help turn today`s science into tomorrow`s progress with just one click! ☝️

Find a clinical trial today by visiting https://www.gbs-cidp.org/research-clinical-trials-directory/

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Open post by gbscidpfoundation with ID 18123117109769255

Help turn today's science into tomorrow's progress with just one click! ☝️

Find a clinical trial today by visiting https://www.gbs-cidp.org/research-clinical-trials-directory/

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