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MMN Clinical Trial Awareness (Program Content)

MMN Clinical Trial Awareness (Program Content)

Helping Patients and Care Partners Understand Opportunities in Research

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GBS|CIDP, MMN Community Day – Seattle, WA on Saturday, July 25.

Join us for a day of education, connection, and community support with leading experts and engaging sessions throughout the day.

🎤 Featured highlights include:
• Misinformation & Myths about GBS/CIDP – Dr. Madeline Singer
• Novel & Emerging Therapies for CIDP – Dr. Michael Weiss

Click the link in our bio to learn more.
#gbs #CIDP #multifocalmotorneuropathy

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Open post by gbscidpfoundation with ID 18121783699740006

GBS|CIDP, MMN Community Day – Seattle, WA on Saturday, July 25.

Join us for a day of education, connection, and community support with leading experts and engaging sessions throughout the day.

🎤 Featured highlights include:
• Misinformation & Myths about GBS/CIDP – Dr. Madeline Singer
• Novel & Emerging Therapies for CIDP – Dr. Michael Weiss

Click the link in our bio to learn more.
#gbs #CIDP #multifocalmotorneuropathy

Feeling weaker, dropping things more often, or struggling to keep up? The “Why Behind Your Weakness” campaign helps individuals and families understand when symptoms might signal more than aging and encourages earlier conversations with healthcare providers.

Understand the “why.” WhyBehindWeakness.org

#WhyBehindYourWeakness #NeuromuscularAwarness #PatientAdvocacy #ANF #LONDC #LONDs

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Open post by gbscidpfoundation with ID 18105603176003057

Feeling weaker, dropping things more often, or struggling to keep up? The “Why Behind Your Weakness” campaign helps individuals and families understand when symptoms might signal more than aging and encourages earlier conversations with healthcare providers.

Understand the “why.” WhyBehindWeakness.org

#WhyBehindYourWeakness #NeuromuscularAwarness #PatientAdvocacy #ANF #LONDC #LONDs

On August 24, Miles for GBS , his wife, and several close friends will travel to France as he takes on Mount Ventoux in honor of his GBS journey. Through this climb, he hopes to raise funds and awareness to help ensure that others affected by GBS have access to the care, resources, and support they need on their own road to recovery. The funds he raises will provide financial assistance for patients diagnosed with GBS to ensure they have access to the care, resources, and support they need on their own road to recovery.

Support Miles & find out more: https://go.gbs-cidp.org/gbs26

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Open post by gbscidpfoundation with ID 17965039742938807

On August 24, Miles for GBS , his wife, and several close friends will travel to France as he takes on Mount Ventoux in honor of his GBS journey. Through this climb, he hopes to raise funds and awareness to help ensure that others affected by GBS have access to the care, resources, and support they need on their own road to recovery. The funds he raises will provide financial assistance for patients diagnosed with GBS to ensure they have access to the care, resources, and support they need on their own road to recovery.

Support Miles & find out more: https://go.gbs-cidp.org/gbs26

The GBS|CIDP Foundation International is proud to share that novel consensus key terms for managing CIDP have been published in Neurology® — helping create a shared language between patients and healthcare professionals.

For years, terms like response to treatment, relapse, and remission have been interpreted differently across care and research settings. Through our Leadership Collaborative, patients and global experts came together to define these terms and move toward more consistent care, stronger communication, and improved readiness for future clinical research.

This work reflects what’s possible when patient voices and medical expertise lead together.

Learn more about the Leadership Collaborative and how this initiative is shaping the future of care by clicking the link in our bio.

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Open post by gbscidpfoundation with ID 18323840011278001

The GBS|CIDP Foundation International is proud to share that novel consensus key terms for managing CIDP have been published in Neurology® — helping create a shared language between patients and healthcare professionals.

For years, terms like response to treatment, relapse, and remission have been interpreted differently across care and research settings. Through our Leadership Collaborative, patients and global experts came together to define these terms and move toward more consistent care, stronger communication, and improved readiness for future clinical research.

This work reflects what’s possible when patient voices and medical expertise lead together.

Learn more about the Leadership Collaborative and how this initiative is shaping the future of care by clicking the link in our bio.

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