Resources for Everyone
If you are new to the world of advocacy and public policy, or want to learn more, we encourage you to check out our library of advocacy resources to learn about the different roles of state and federal governments in health care, as well as policy relevant to your state.
Advocacy Priorities Past & Present
Advocacy Toolkit for New Advocates
State-Specific Condition Fact Sheet
State-Specific Policy Fact Sheet
Americans with Disabilities Act (ADA)
Advocacy News
August 19, 2026
Advocating Locally with the Foundation
There's a persistent idea in advocacy that the work happens in Washington, that unless you've…
July 22, 2026
GBS|CIDP Legislative Agenda 2026 | Advocacy Priorities
Support Robust Research Funding Currently, there is no cure for GBS, CIDP, or MMN. Patients…
December 9, 2025
Write a Letter to Help Protect ACA Tax Credits!
To write your Senator/Representative, please fill out the letter below including your name, condition/relationship to…