Lisa Butler
President & CEO
Lisa Butler officially joined the Foundation staff in December, 2013. She first learned of the Foundation in 1992 when her father-in-law was diagnosed with GBS. Ten years later, Lisa’s son, Stuart, was diagnosed with GBS. Following Stuart’s recovery, Lisa became the parent Liaison for the Foundation for “parents with children diagnosed with GBS”.
Lisa maintains a BA in English in addition to having a ten-year career in marketing and event planning for nonprofits. Prior to assuming her position as Executive Director, in 2015, Lisa managed the Foundation’s marketing and development programs. She has been recognized by Patient Services, Inc. (PSI) with the Extraordinary Support Award.
Lisa is a member the Board of Directors for the National Health Council and is The Chair of the Audit Committee and a member of the Finance Committee.
Lisa, and her husband Tom – a mergers and acquisitions specialist – have three sons. They most enjoy spending time visiting their sons in Boston, Colorado and locally in Philadelphia. Lisa enjoys yoga, reading, cooking, and spending time outdoors, walking trails and beaches.
“When you are present with us, you belong to a community. Whether you are a volunteer, a patient, a care-giver, a physician, or supporter, you will always belong here!”

