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July 18, 2017

Multifocal Motor Neuropathy (MMN)

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Highlights from the Peripheral Nerve Society (PNS) meeting in Maastricht, Netherlands.

From connecting with attendees at the GBS|CIDP Foundation booth, to bringing together past, current, and new GMAB members, to Nancy and Richard presenting priorities on the main stage as part of the Inflammatory Neuropathy Consortium—it was a valuable time spent advancing collaboration and elevating the patient voice.

#peripheralnervesociety #PNS #cidpwarrior #cidpawareness #guillainbarresurvivor #guillainbarresyndrome #multifocalmotorneuropathy #guillainbarré

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Highlights from the Peripheral Nerve Society (PNS) meeting in Maastricht, Netherlands.

From connecting with attendees at the GBS|CIDP Foundation booth, to bringing together past, current, and new GMAB members, to Nancy and Richard presenting priorities on the main stage as part of the Inflammatory Neuropathy Consortium—it was a valuable time spent advancing collaboration and elevating the patient voice.

#peripheralnervesociety #PNS #cidpwarrior #cidpawareness #guillainbarresurvivor #guillainbarresyndrome #multifocalmotorneuropathy #guillainbarré

At eight years old, Ashley was diagnosed with Guillain-Barré syndrome and spent nearly a year in the hospital after losing the ability to walk. Despite doctors believing she would never walk again, her mother helped her slowly regain my mobility through years of dedication and recovery. Today, Ashley is a licensed professional counselor, using her experience to help others find resilience, healing, and hope.

▶ Learn more about Ashley and her journey with GBS by visiting our story portal.

#guillainbarre #rarediseasewarrior #gbssurvivor #nonprofitorganization #RareDiseases #PatientCommunity #Neurology #disabilitiesawareness #GBSAwareness

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Open post by gbscidpfoundation with ID 18068417537394831

At eight years old, Ashley was diagnosed with Guillain-Barré syndrome and spent nearly a year in the hospital after losing the ability to walk. Despite doctors believing she would never walk again, her mother helped her slowly regain my mobility through years of dedication and recovery. Today, Ashley is a licensed professional counselor, using her experience to help others find resilience, healing, and hope.

▶ Learn more about Ashley and her journey with GBS by visiting our story portal.

#guillainbarre #rarediseasewarrior #gbssurvivor #nonprofitorganization #RareDiseases #PatientCommunity #Neurology #disabilitiesawareness #GBSAwareness

Did you know it’s been 110 years since Guillain-Barré Syndrome was first identified?

To honor this milestone, the GBS|CIDP Foundation created the GBS110 patient story archive to help share real experiences from our community around the world.
Whether you are a GBS patient or care partner, your voice can help raise awareness, inspire others, and ensure no one faces GBS alone.

We want to hear from YOU! Share your story today: https://thegbs110.com/

Learn more about the GBS|CIDP Foundation International: www.gbs-cidp.org

#StrongerTogether #PatientEducation #HealthEducation #RareDiseases #PatientVoices #Neurology #PatientCommunity #CIDPWarrior #GlobalImpact #nonprofitorganization #disabilitiesawareness #rarediseasewarrior #guillainbarre #SupportAndAwareness #AwarenessMonth #gbssurvivor #cidpawareness #cidpwarrior #guillainbarresurvivor #guillainbarresyndrome #guillainbarrésyndrome #cidp #guillainbarré

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Open post by gbscidpfoundation with ID 18116862799884332

Did you know it’s been 110 years since Guillain-Barré Syndrome was first identified?

To honor this milestone, the GBS|CIDP Foundation created the GBS110 patient story archive to help share real experiences from our community around the world.
Whether you are a GBS patient or care partner, your voice can help raise awareness, inspire others, and ensure no one faces GBS alone.

We want to hear from YOU! Share your story today: https://thegbs110.com/

Learn more about the GBS|CIDP Foundation International: www.gbs-cidp.org

#StrongerTogether #PatientEducation #HealthEducation #RareDiseases #PatientVoices #Neurology #PatientCommunity #CIDPWarrior #GlobalImpact #nonprofitorganization #disabilitiesawareness #rarediseasewarrior #guillainbarre #SupportAndAwareness #AwarenessMonth #gbssurvivor #cidpawareness #cidpwarrior #guillainbarresurvivor #guillainbarresyndrome #guillainbarrésyndrome #cidp #guillainbarré

Thank you, Philadelphia, for another unforgettable Walk & Roll this past Saturday! 💙💚

A special shoutout to our Walk & Roll Manager, Zach, whose passion, dedication, and heart helped make this event so meaningful—especially here in the Foundation’s hometown of Philly.

And thank you to our incredible staff, volunteers, sponsors, and everyone who showed up, walked, rolled, supported, and raised awareness with us. Because of you, this event continues to grow and bring our community together in such a powerful way.

Philadelphia—we can’t wait to do it again next year! Stay tuned for more photos!

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Open post by gbscidpfoundation with ID 17909819964420537

Thank you, Philadelphia, for another unforgettable Walk & Roll this past Saturday! 💙💚

A special shoutout to our Walk & Roll Manager, Zach, whose passion, dedication, and heart helped make this event so meaningful—especially here in the Foundation’s hometown of Philly.

And thank you to our incredible staff, volunteers, sponsors, and everyone who showed up, walked, rolled, supported, and raised awareness with us. Because of you, this event continues to grow and bring our community together in such a powerful way.

Philadelphia—we can’t wait to do it again next year! Stay tuned for more photos!

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