LGBTQ+ Coffee Chat for GBS, CIDP, MMN & Variant Conditions

Event Description

About this Event

Join us for a special LGBTQ+ Coffee Chat, created specifically for individuals in the LGBTQ+ community who are living with GBS, CIDP, MMN, or a related variant condition. This virtual gathering is a safe, welcoming space where participants can share openly, connect authentically, and feel understood—both in their health journey and in their personal life.

This chat serves to provide participants with a comfortable, respectful environment to express their experiences and emotions in the context of who they are, alongside others who truly understand what it means to navigate life with a rare condition.

Meet Your Coffee Chat Hosts:

Russ is a Foundation volunteer & Board Member who had GBS in 2005. He discovered the Foundation during his recovery and decided that serving as a liaison would be a great way of helping others going through GBS and related disorders. He additionally serves on the Foundation board of directors, and recently related his experience with GBS in a video produced by Annexon Bio and a podcast produced by RareCast.

Valentina lives in Mexico, she had GBS as a baby in 1984, has been volunteering for the Foundation since 2012 when she attended a Symposium in Forth Worth, Texas and now serves as a Board of Directors member.