Volunteer with the Foundation
We always welcome new volunteers! If you’ve been affected by GBS, CIDP, MMN, or a variant, you understand how important it is to have access to information and support. Our volunteers are key members of the Foundation team, they’re invaluable in helping the Foundation support patients and their families. There are a variety of ways for you to get involved, and we are happy to work with you to find a role that best suits your interests.
Patient Support
With rare diseases, it’s easy to feel alone, but the Foundation is committed to building an inclusive community of patients, caregivers, family members, and medical professionals who are all united in support of our members. As many of you know from experience, having someone to talk to who understands what you are going through makes a world of difference. Our team of Liaisons, who are all either survivors/patients themselves or caregivers, volunteer to help in many ways, such as:
Hospital Awareness & Hospital Visits
Sharing educational collateral with local hospitals, rehabilitation, and physical therapy clinics is a great way to raise awareness in your local community. When applicable, visiting patients, in a hospital setting, who are coping with GBS, CIDP, MMN, or a variant, can offer much needed support.
Hosting Local Chapter Meetings In-Person or Virtually
Holding local chapter meetings for patients and caregivers is a great way to offer local support and further the Foundation’s mission of support and education.
Providing Peer-to-Peer Support Through Phone, Email, or Zoom
A friendly, knowledgeable voice and a quick chat can make all the difference in someone’s recovery.
Submitting a Patient or Caregiver Story
Our online story portal offers support and connection for both the reader and storyteller. Simply sharing what you’ve been through can give encouragement and relief to many others.
Editorial Language Translations
We translate materials and presentations as we expand our global footprint. Are you fluent in other languages? Lending your translation skills will greatly support the Foundation’s worldwide goals.
Topic and Idea Contributions to the Newsletter
There’s no better voice than the patient and caregivers when it comes to offering real-life experience and advice for coping with GBS, CIDP, MMN, or a variant. Do you like to write? We welcome editorial content from patients and care partners for our newsletters.
Volunteer Sign Up
If you are interested in volunteering for patient support, please fill out the form. While we appreciate all inquiries, please understand that we are limited in the number of volunteers we can accommodate.
We are thrilled that you are interested in volunteering to helping us accomplish our mission. Please fill out this brief survey to tell us more about your interests and we will reach out to you to talk about the next steps.