About

Patient Needs Come First

Our commitment is our story. It all began with eight people sitting around a dining table over 30 years ago.

Through the hard work and determination of our founder, Estelle Benson, the Foundation grew larger and has become able to support many patients, family members, friends and caregivers. The Foundation is committed to continuing to provide the experience of care and support so indicative of the original Foundation.


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  • Topics of Interest

    research-grants

    How Life Continues Post Diagnosis

    Read actual patient stories about how many have been touched by the work of our employees & volunteers. It will make you even more proud to support the Foundation. Who knows…maybe even submit something yourself?
    research-grants

    Importance of Early Diagnosis & Treatment of CIDP

    Back in December 2010, a survey was mailed to 2,400 of our patient members. It contained questions on demographics, past & present treatment patterns, disability level, neuropathic pain, and quality of life to name a few.
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