An update from Chelsey Fix, Advocacy Manager 17 Days = 100 Advocates! We are officially halfway through GBS|CIDP Awareness Month, and I am THRILLED to share with you that 100 members of the GBS|CIDP community have written a letter to their Members of Congress! That is 100 times that Senators and Representatives had a chance…Read More about GBS|CIDP Awareness Month Going Strong!
Imagine the shock and helplessness of seeing your child’s body suddenly growing weak, clumsy, and unable to walk, or even stand; the fear that they may never live a normal life, or even survive this terrifying, disabling disorder.Read More about In Response to NY Times article, “What is the Blood of a Poor Person Worth?”
In response to the breaking news in Dallas this morning regarding Travis Frederick of the Dallas Cowboys, and his recent Guillain-Barré Syndrome diagnosis, the GBS|CIDP Foundation International issues the following statements, for those seeking clarity and more information.Read More about Breaking News in Dallas, TX – Travis Frederick of Dallas Cowboys diagnosed with GBS
The Food and Drug Administration granted marketing clearance Friday for Hizentra, a treatment for chronic inflammatory demyelinating polyneuropathy (CIDP) developed by CSL Behring. Lisa Butler, executive director of the GBS/CIDP Foundation International, said “The approval of Hizentra offers patients who were once burdened by traveling to the infusion center or hospital the flexibility to self-administer their treatment at…Read More about FDA approves CSL Behring treatment for CIDP
The GBS|CIDP Foundation International is delighted to share this important Walk & Roll update! On March 10 at Dry Creek Park in Clovis, California, GBS volunteer and Clovis Walk Chairman, Robert Vasquez hosted an exciting Walk & Roll fundraising event with a record-breaking 300 walkers in attendance! Thus far the event has raised over $6,500 (and counting) to support…Read More about Clovis Walk & Roll Breaks Record!