The COVID-19 Rare Disease Critical Needs Non-Medical Assistance Fund from The National Organization of Rare Disorders

The National Organization of Rare Disorders (NORD) launched a COVID-19 Critical Relief Program to provide much-needed assistance to members of the rare community affected by the current pandemic. The program provides financial relief that may be utilized to support critical, non-medical needs. 

The COVID-19 Critical Needs Non-Medical Assistance Fund provides eligible individuals impacted by the COVID-19 pandemic, with financial assistance for unexpected or emergency, essential expenses such as:

  • Unexpected Utility Expenses
  • Communication expenses (e.g. phone, cell phone, internet)
  • Emergency repairs to car, furnace, home, or major appliances
  • Assistance with travel and/or lodging expenses
  • Rent or mortgage payment assistance
  • Support for adaptive learning during school closures

Eligibility requirements for the program include:

  • Patients must have a confirmed rare disease diagnosis
  • Individuals must be US citizens or provide documentation of permanent US residency status; or resident of the United States for at least six months. Applicants must be willing to provide proof of residency such as a utility bill indicating their name and address.
  • Applicants must meet financial eligibility criteria (at or below 400% of the Federal Poverty Level guidelines (FPL) or demonstrate financial impact/mitigating circumstances due to the COVID-19 pandemic (examples include job loss, inability to work due to stay-at-home orders, school closures etc.).
  • The need for which assistance is being sought must meet the critical needs, non-medical essential criteria.

To be considered for eligibility, please provide your full name, a phone number at which to be reached, and the rare disease which you/your family member has been diagnosed. Email this information to covid19assistance@rarediseases.org, and you will be contacted in a few days after your initial contact.

For more information, visit https://rarediseases.org/nord-launches-financial-assistance-program-for-rare-disease-community-members-impacted-by-covid-19/

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