The GBS|CIDP Foundation is committed to sharing the most accurate information from the world’s leading experts, many from our Global Medical Advisory Board. The COVID-19 situation changes daily and we will continue to share updates that are vetted by the experts in GBS. In addition, we are in regular contact with the FDA representing the patient voice in the top-level decision-making. We understand that there are many opinions creating confusion so please consider the source of your information before drawing conclusions. As always, all decisions should be made with your personal physician based on your own health. Please continue to check our website for updated COVID-19 information.
In reaction to recent research published in Brain (click here to read more), Professor Lunn has offered this guidance in regards to our community:
One vaccine is not the same as another. The only reason that one advises against flu vaccine in someone with GBS is if they actually had GBS in the 6 week window after a flu vaccine and then only out of an abundance of caution which is not based on any real science.
The rate of GBS after flu vaccine in all assessed years after 1976 has been about 1 per million and no study has linked vaccination to recurrence of GBS or CIDP.
COVID vaccine is nothing like flu vaccine. COVID doesn’t cause GBS in any significant number if at all and there is no reason to suspect the vaccine would cause it.
Statement attributed to: Professor Michael Lunn MA MBBS FRCP PhD Consultant Neurologist and Professor of Clinical Neurology National Hospital for Neurology and Neurosurgery Queen Square, London
The GBS|CIDP Foundation is committed to sharing the most accurate information from the world’s leading experts, many from our Global Medical Advisory Board. The COVID-19 situation changes daily and we will continue to share updates that are vetted by the experts in GBS. In addition, we are in regular contact with the FDA representing the patient voice in the top-level decision-making. We understand that there are many opinions creating confusion so please consider the source of your information before drawing conclusions. As always, all decisions should be made with your personal physician based on your own health. Please continue to check our website for updated information.
A UK based epidemiological study, linked below, has found no causal association between COVID-19 infection and Guillain-Barré syndrome. This means that GBS developing at the same time or close to that of COVID-19 is most likely coincidental. A number of peripheral nerve world leading experts have also written a separate commentary, linked below, in light of this study to explain there is no reason for the COVID-19 vaccine to cause GBS, and that any cases that do occur around the time of vaccination are again most likely coincidental (as cases occur at around 1 per 100,000 people per year). They stress the importance of recognising this fact, and therefore not interrupting the COVID-19 vaccination programme when sporadic cases of GBS occur which will be inevitable.
May of 2020 has brought unprecedented challenges and changes, the world over. We hope you find comfort in knowing that the GBS|CIDP Foundation International has made every effort to continue to Support,Educate, fund Research and Advocate for our patients in new and innovative ways. We are here for you today, tomorrow and always.
This May, please join us in raising awareness of all patients struggling with GBS|CIDP, and the many efforts being made to support our community in these times of uncertainty, and in their time of need. #GBSCIDPawareness
Part of our virtual “Ask the Expert” educational series “working together in new and innovative ways,” which features medical experts from the Foundation’s Global Medical Advisory Board.
Our educational series will be pre-recorded, and hosted by members of the GBS|CIDP Foundation staff, who will be asking questions that have come straight from our members via social media, phone calls, and emails. The entire series continues to be updated on our website and YouTube channel.
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