*Times listed in BLUE indicate concurrent sessions
Thursday, November 1st
- Noon-4:00pm Registration
- 4:00pm Meet for Walk & Roll along Mission Bay
- 4:30pm Kickoff of Welcome Reception
- 6:00pm Desserts by Region
Friday, November 2nd
- 8:00-9:00 Continental Breakfast
- 8:15-8:30 Welcome Introduction – Lisa Butler
- 8:30-9:00 Keynote Address – Michael Coleman
- 9:00-9:30 Managing Your Fatigue – Dr. Bart Jacobs
- 9:30-10:00 Benson Fellow Recap & Announcement – Dr. Ruth Huizinga and Dr. Janev Fehmi
- 10:00-10:30 Break
- 10:30-11:00 Current Research
CIDP & MMN: Dr. Jeff Allen Sponsored by Shire
GBS: Dr. Bart Jacobs - 11:00-11:30 Breakout Sessions
CIDP/MMN Treatments – Dr. David Saperstein
GBS Promising New Therapies – Dr. Ted Yednock - 11:30-12:00 Breakout Sessions
CIDP/MMN ‘What if My Treatment Isn’t Working?’: Dr. David Cornblath
GBS “Life After GBS”: Dr. Ken Gorson and Dr. Bart Jacobs
Kids & Teen Session: Dr. Diana Castro - 12:00-1:30 LUNCH
- 12:00-12:30 Lunch & Learn Sponsored by CSL
- 1:15-1:30 Chair Aerobics
- 1:30-2:00 Breakout Sessions
Sexual Health – Men’s Session: Dr. Joel Steinberg and Jeffrey Wertheimer, Ph.D
Sexual Health – Women’s Session: Linda Brubaker, MD and Lynn Kuttnauer, Ph.D
Insurance & Advocacy Updates – Dane Christiansen of Health and Medicine Council - 2:00-2:30 Adaptive Living Session: Maria Illiano Harris & Charla Fronczkowski – Bryn Mawr Rehab
- 2:30-3:00 Break
- 3:00-3:30 Managing Your Fatigue: Dr. Bart Jacobs
- 3:00-3:50 An Integrative Approach to Autoimmune Neuropathy: Dr. Julie Rowin
- 3:30-4:00 Insurance & Advocacy Updates – Dane Christiansen of Health & Medicine Council
- 4:00-5:00 Ask the Experts
CIDP & MMN: Dr. Jeffrey Allen, Dr. David Saperstein, Dr. Carol Lee Koski, Dr. Julie Rowin
GBS: Dr. Bart Jacobs, Dr. David Cornblath, Dr. Diana Castro, Dr. Richard Lewis
Saturday, November 3rd
- 8:00-9:00 Continental Breakfast
- 8:30-9:00 Understanding a Neurologist’s Approach to the Diagnosis & Treatment of GBS, CIDP & Related Variants – Dr. Richard Lewis
- 9:00-9:30 Managing Residuals – Dr. Ken Gorson
- 9:30-10:00 Managing Stress: Why & How: Dr. Richard Lewis and Dr. Lynn Kuttnauer
- 9:30-10:00 Benson Fellow Recap & Announcement – Dr. Ruth Huizinga and Dr. Janev Fehmi
- 10:00-10:30 Break
- 10:30-11:00 Breakout Sessions
CIDP: All About the Infusion Process: Amy E. Clarke, RN IgCN
GBS – Then & Now: Residuals? Relapse? Recurrence?- Dr. David Cornblath - 11:00-12:00 Emotional Health Breakout
Caregivers: Dr. Lynn Kuttnauer, Psychologist
Patients: Jeffrey Wertheimer, Ph.D - 12:00-1:30 LUNCH
- 12:00-12:30 Lunch & Learn Sponsored by Grifols
- 1:30-2:00 Ways to Get Involved with the Foundation
- 2:00-3:00 PT/OT Session, Exercise on Own: Maria Illiano Harris & Charla Fronczkowski – Bryn Mawr Rehab
- 3:00-3:30 Vaccinations: Dr. David Sapertein
- 3:30-4:30 Ask the Experts
CIDP & MMN: Dr. Ken Gorson, Dr. David Cornblath, Dr. Bart Jacobs, Dr. Richard Lewis
GBS: Dr. David Sapertein, Dr. Jeffrey Allen, Dr. Carol Lee Koski - 5:00-8:00 ‘Cheers to 30 Years’ Closing Celebration
Concurrent Session Both Days: “Zen Den” Meditation, Mindfulness, and Yoga Pam Butler & Sterling Yoga