In March, the GBS/CIDP Foundation International hosted our 2013 Advocacy Capitol Hill Day. We were joined by patient advocates and their family members from throughout the United States, from Maryland to Hawaii.
On the first day, participants spent the afternoon in an advocacy training session which reviewed the legislative GBS/CIDP priorities, the importance of advocacy and information on how to make a successful Congressional Hill Visit.
Whether you are first-time advocate or a seasoned GBS/CIDP advocate, these training sessions provide you with the information to need to make your visit a success. On Wednesday, Foundation advocates spent the day on Capitol Hill meeting with Senators, Representatives and Legislative Staffers to discuss:
- The importance of federal investment in GBS/CIDP biomedical research at the National Institutes of Health,
- Maintaining the availability of lifesaving diagnostic tests for neurological conditions for patients, and
- Ending burdensome, of out of pocket costs from private insurance company “specialty” tiers for IVIg and other necessary prescriptions through the Patients’ Access to Treatments Act.
As we work to enhance awareness, research and support for GBS and CIDP and the issues that are important to patients like you, the Foundation will provide more information on ways to make your voice in heard in Washington, your state, and throughout your community.
Visit our Advocacy Page to learn about joining a local chapter, writing or calling your elected officials or participating in a GBS/CIDP event.