From the Executive Director

Dear Friends,
As always at year’s end, we tend to reflect on the year past. So much has happened this year that recapping would need its own newsletter!

On the following pages, you will read of some of our accomplishments, events, research, activities, etc. None of these could have happened without all of you! Of
course, our Board of Directors, Global Medical Advisory Board, Chapter Liaisons, Walk-n-Roll chairs, and Points of Contact are all identified and we are grateful for the amazing job they do!

But it is the micro-volunteers who also deserve acknowledgement, those of you who are an unnamed part of our family, who are out there also
carrying out our missions of support, education, research, and advocacy. For example: patients who request extra materials to give to their doctors; young people requesting bracelets for a “pop-up” school activity; off-time volunteers to exhibit at their local health fair.

Thank you to those who contribute to our social media pages. We can go on and on. What a great organization! What a great family! What greater message can I send to you but the best of health, happiness, and peace for the New Year!

Lisa Butler
Executive Director

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