Given these disorders are so rare, it can be challenging to find news stories, blogs or other online information. As part of keeping our community informed and up-to-date, we continually gather news-worthy information and share it here.
We also like hearing from you about the types of stories, articles, etc. that you are interested in reading. Feel free to send us feedback or even articles that you suggest would be appropriate and helpful for others.
The GBS|CIDP Foundation International is delighted to share this important Walk & Roll update! On March 9 at Dry Creek Park in Clovis, California, GBS volunteer and Clovis Walk Chairman, Robert Vasquez hosted yet another exciting Walk & Roll fundraising event with a record-breaking 320 walkers in attendance! Thus far the event has raised $10,356…
Read More about Clovis Walk & Roll Breaks its Own Record!
In 2017, a nationwide survey of US CIDP patients was conducted to assess the impact of disease-related disability and treatment on lifestyle and work activities. Approximately 3250 individuals aged ≥18 years, recruited by the GBS|CIDP Foundation and self-reported to have CIDP, were invited to complete an online survey; of these, 475 completed the survey and…
Read More about CIDP Disease Burden — Results of a US Nationwide Patient Survey
On March 4, the Fresno BEE published “Rare illness left this Clovis man paralyzed. Now he’s helping others,” featuring GBS|CIDP Foundation’s volunteer, Rob Vasquez of Clovis, CA. The Clovis Walk & Roll, March 9, hosted by Rob, is the first of the 2019 Walk & Roll season! See Fresno Bee Video and Article
Read More about Clovis, CA Walk & Roll Chair in the News
2019 Schedule of One-Day Regional Conferences including at dates and locations.
Read More about One-Day Regional Meetings Are Back for 2019Join Us! November 1-3 2018! Symposium 2018 will feature a wide array of presentations and workshops led by our best medical professionals, and will offer a unique opportunity for those affected by GBS, CIDP, and variants to meet with other patients and families from around the world. Register Now
Read More about Special Symposium Discount Extended to September 1, 2018!