At GBS|CIDP Foundation International, we recognize the power of unity and awareness in the fight against rare diseases. On Rare Disease Day, we stand with our global community to shine a light on Guillain-Barré syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN), and related neuropathies. This day is a vital reminder that while these conditions may be rare, the strength of our community is not. Together, we advocate for better research, improved treatments, and a future where no one faces these challenges alone. Join us as we raise our voices and show the world that rare is strong!
Show You Are Rare
Show that You Are Rare by sharing your patient story with the GBS|CIDP Foundation International. Your journey is powerful—it can inspire, educate, and bring hope to others facing similar challenges. By submitting your story to our Patient Story Portal, you help raise awareness and build community. Every voice matters, and yours can make a difference! Share your story today.
Show You Care
Join the GBS|CIDP Foundation International for a virtual coffee chat focused on breaking the isolation that often comes with living with a rare disease. This informal and supportive gathering is a chance to connect with others in the GBS, CIDP, and MMN community, share experiences, and find encouragement from those who truly understand. Whether you’re a patient, caregiver, or advocate, join the conversation—because no one should face a rare disease alone. Register today!
Celebrating Rare Disease Day Around the World
Agrigento, Italy—nominated as the Italian City of Culture 2025—became a hub of history, art, and hope at the Rare Disease event: Innovation in Research, Culture, and Care on February 22nd.
Patients, caregivers, organizations, researchers, and physicians united to share knowledge, collaborate, and shape a brighter future.
Nancy Di Salvo, Director of International Affairs and a CIDP patient, represented the foundation with an insightful presentation. Continue reading…