How will you Show You Care for Rare… this Rare Disease Day? (February 28, 2021)
In 2020 the world’s attention turned to public health matters in light of the COVID-19 pandemic, however, there are still millions in the United States and around the globe living with rare diseases and accompanying life-altering issues that are largely unknown to the general public. Rare Disease Day is on February 28, 2021, and the Foundation encourages you to help shine a light on the challenges faced by GBS|CIDP patients and their families, around the globe.
About Rare Disease Day
Launched by EURORDIS-Rare Diseases Europe in 2008, Rare Disease Day is the patient-led international awareness campaign that brings people together in solidarity with the 300 million patients impacted by rare diseases worldwide. In 2009, Rare Disease Day became a global event when The National Organization for Rare Disorders (NORD) became the official sponsor of the celebration in the United States.
This year, the GBS|CIDP Foundation honors those living with rare disease by supporting our global community in new and meaningful ways. “Our mission is to ensure no one, no matter where they reside, faces the challenges of Guillain-Barre Syndrome or Chronic Inflammatory Demyelinating Polyneuropathy, alone.” – Lisa Butler, Executive Director
- RAISE AWARENESS BY ADDING A LITTLE RARE DISEASE DAY FLARE TO YOUR SOCIAL MEDIA BADGES. Once you’ve spruced up your pic, copy and paste this message on your social channels:
Sample TweetToday is #RareDiseaseDay. I am raising awareness for the #GBSCIDP community & the challenges of rare neurological conditions. #GuillainBarre #CIDP
GLOBAL ACTIVITIES FOR THE GBS|CIDP COMMUNITY, FEB. 28, 2021
- First “Spanish Language” Chapter Meeting
- Launch of multi-lingual GBS|CIDP Overview Booklets
- Launch of GBS|CIDP Foundation International (EU) Web Portal
(Link will be live February, 28, 2021 – site will be translatable into following languages: Czech, Dutch, French, German, Hungarian, Italian, Portuguese, Spanish, Swedish.)