Giving Hope to our Global Rare Community for #Rarediseaseday
Rare Disease Day (RDD) takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. This year the GBS|CIDP Foundation International has several RDD activities planned around the globe! Check out the calendar below and join us in showing that you care for rare! Download a rare disease day sign below and create a “rare selfie” on social media too! #rarediseaseday.
Sample TweetToday is #RareDiseaseDay. I am raising awareness for the #GBSCIDP community & the challenges of rare neurological conditions. #GuillainBarre #CIDP
February 24 – GBS|CIDP Foundation International will join the FDA global observance of Rare Disease Day in Washington DC, which was created to raise awareness about the 7,000 known rare diseases, many of which have no treatment. Follow us on social media with updates & news from the day.
February 26 – Patient Registry One Year Anniversary! The Foundation will provide a Registry One Year Report on our News and Media section of our website.
February 27 – It’s all because of you! Don’t miss a special thank you message to our donors as recap the 2019 rare achievements that have been supported by your donations.
February 28 – GBS Celebrates Rare Disease Day in Australia! Follow Kelly and Meg’s journey overseas to hold our very first patient support meeting in Australia, on Rare Disease Day!
February 29 – It’s Rare Disease Day! Tell us why you care for rare! Download the RDD image below, use #rarediseaseday and post a message of support on your social media channels!Need more resources? Join our community!