CIDP doctor in Miami

    • gslm
      December 22, 2013 at 11:18 pm

      I am very new to all this.

      Could anyone recommend a CIDP doctor in Miami area? Thank you in advance!

    • Jim-LA
      December 23, 2013 at 1:34 am

      Dr. Ram Ayyar and Dr. Steven Resnick, both in Miami, have been recommended elsewhere in this forum. I have no first hand knowledge of either.

      Please contact your local GBS/CIDP Chapter office for doctor referrals here:
      Caroline Morrison
      Miami, FL 33133
      Phone – 305 498 3147
      Email – sunsetclm@earthlink.net

      I hope you get the best treatment available so you are fully in ‘recovery mode’ soon.

    • gslm
      December 23, 2013 at 1:47 am

      Thank you very much!

    • gslm
      December 24, 2013 at 5:31 pm

      Another question: I know there is no Center of Excellence in Florida, but anyone knows a hospital in Florida that’s relatively good with CIDP?

      I am in limbo and need a firm and accurate diagnosis.

    • GH
      December 24, 2013 at 6:31 pm

      The hospital doesn’t make the diagnosis, the neurologist does. I was treated successfully in a hospital which is not a Center of Excellence. But I had two excellent neurologists, and the hospital has excellent staff and the necessary equipment. The only special equipment required is a lumbar puncture room with fluoroscopic-aided equipment, and a plasmapheresis machine if you get plasma exchange.

    • Jim-LA
      December 24, 2013 at 7:15 pm

      The University of Miami Hospital and the Mount Sinai Medical Center have experience with GBS/CIDP, according to posts from other forum members:
      http://umiamihospital.com
      http://www.msmc.com

    • gslm
      December 24, 2013 at 8:00 pm

      Thank you so much GH and Jim-LA. You have no idea how much your posts have helped me in the past couple of days. I begin to think I can still lead a near normal life with CIDP.

      I will definitely pursue a new neurologist. Just need to know who is the right one. I want to go with a proven doctor/center because I think if I go with a “trial and error” approach with finding the right neurologist, it will likely delay my diagnosis.