CIDP and profuse sweating?
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June 28, 2010 at 5:29 pm
Hi all,
I live in Miami, Fl, the hottest place on Earth (at least it feels that way sometimes). Anyway, I have noticed that in the last 2 years, my sweating has become intollorable! It is about 90 degrees F, but with the humidity factor, it feels like 107! I have noticed in the past 2 years (Springs/Summers) that I cannot be outside for more than 5 minutes without sweating so much that it is embarrasing. People come up to me asking me if I am alright. It is so embarrassing! I also can’t tell now if I am sweating more now after the IVIG treatments. Since I started my IVIG when it was about 75 degrees this year I haven’t been treated during the hot months before. So I guess another question would be does IVIG cause sweating and the other would be, does CIDP cause sweating? Does anyone have any tricks on how to slow this sweating? I have started drinking water with fresh mint and sliced limes inside which seems to help me stay cool, but the sweating doesn’t stop! PLEASE HELP!!!!!:mad: I am going out of my mind and changing my clothes every time I run an errand!:( -
June 28, 2010 at 5:46 pm
My husband has been very troubled by profuse sweating, and he has CIDP-MADSAM. Neurologist seemed puzzled with his complaint and sent him for a bunch of tests to rule out various things. But now we are wondering if it is actually related to him taking Modafinil for fatigue. I halved his dose and the sweating is less. Are you on any medications that may have sweating as one of the side effects?
Laurel -
June 29, 2010 at 12:23 am
[QUOTE=laurel]My husband has been very troubled by profuse sweating, and he has CIDP-MADSAM. Neurologist seemed puzzled with his complaint and sent him for a bunch of tests to rule out various things. But now we are wondering if it is actually related to him taking Modafinil for fatigue. I halved his dose and the sweating is less. Are you on any medications that may have sweating as one of the side effects?
Laurel[/QUOTE]
I stopped taking all the medications that were given to me from my neuro’s like neurontin, cymbalta, lyrica, savella because the side effects were uncomtrolable eating (I gained 40 pounds in 3 months), and that is no fun with the neuropathy on my feet. I eventually turned into a zombie. I was sleeping 18 hours a day and lost my memory. I am a mom of 2 small kids. I wanted to keep my family together. Had I continued that way, I feel I would have ended up divorced and deemed an unfit mom, because let’ face it, I was. I was unavailable to my 4 and 2 year old and worst of all, none of the pills, except Lyrica worked on the pain. Lyrica was great, but I slept all of December and wasn’t even able to open presents with my kids during the Holidays, I became catatonic. I now control the pain with Opana (a morphine) and I am getting my IVIG treatments which I am afraid to say I don’t feel are working. I take medication to wake up, Adderral for A.D.D. which I have taken for years and then sleeping pills to sleep at night so I can be available to my family. All the meds I am on, I have been on for a while and sweating was never an issue until about 12 months ago when I noticed my health taking a sharp dawnhill turn. I am sure that the extra weight doesn’t help, but I remember this was an issue before the weight gain:confused: I just don’t know what to do anymore. Best of luck to you and your husband. I am glad to hear that you have noticed the side effect lesson. It is awful. It just feels like your blood is hot and you can’t stop sweating:( -
June 29, 2010 at 2:32 pm
Sorry to hear of all your stuggles. I once told my wife, “if this thing (CIDP) had to strike our family I am thankful it hit me and not you”. She is the glue that holds our family together. Being a male and dealing with this damn thing has got to be easier than a female, especially a mother of two young ones.
The sweating problem recently took a turn for the worse as our humidity rose here in the northland. It was driving me crazy as well. I could simply sit in my office and my shirt would be soaked. I finally had to make the building super turn up the air due to my “medical condition”.
For me I reduced my Cymbalta a little (1/3) and it helped….didn’t return me to normal, but it did help. I have found that the anti-depress. drugs make my body run warm (hot) and my family hates it. They sit inside with a blanket and sweatshirt while I have shorts and a t-shirt on. Then when I do any little exercise I “overheat”.I also dropped one medication that helped me fight off fatigue and actually take simple caffeine pills to keep going. I’m not a coffee drinker, never have been. The over the counter pills allow me to stay focused and not overheat as much as the anti-depressants or hot coffee. Plus they are pretty short term effect so I can “throttle” down at night before taking a sleeping pill.
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July 3, 2010 at 3:40 pm
I also notice in the summer if it gets over 70 F outside and I do work outside or inside the house where it’s hotter I sweat like crazy. My hair gets all wet like I just washed it without towel drying it or It’s dripping like I was caught in the rain. Then I get in a cold sweat and feel sick to my stomach. Usually because I did more then my body could handle in the heat. Then I have to take a cool bath to lower my heart rate and to get rid of that sick feeling.
I am glad you brought it up I don’t hear many people discussing about the heat affecting them and when I tell my Drs they are not quite sure if from my CIDP but I know it is because it started the summer after I got CIDP.
Sue
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July 7, 2010 at 7:44 am
When I first got sick I felt smothering, burning hot & felt progressively hotter as time went on. I was not on any meds. at that time, except, hormones, which didn’t seem to help. After about 5 yrs. into it other people noticed that my skin felt cool, even cold to touch, but I still felt burning hot. Now 8 + yrs. into it I’m not that hot & the sweating has lessened. I even feel cool sometimes. Here in sunny TX the temp gets over 100 & the the humidity gets up to 100 as often. Thank God for air conditioning! I’m not very active & I stay indoors. A friend of mine had profuse sweating, her Drs. figured out that it was a combination of her meds.
Yep, it must be part of CIDP & GBS, since so many of us have it!
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July 7, 2010 at 7:46 am
So sorry about all the sweating. When I first got sick I felt smothering, burning hot & felt progressively hotter as time went on. I was not on any meds. at that time, except, hormones, which didn’t seem to help. After about 5 yrs. into it other people noticed that my skin felt cool, even cold to touch, but I still felt burning hot. Now 8 + yrs. into it I’m not that hot & the sweating has lessened. I even feel cool sometimes. Here in sunny TX the temp gets over 100 & the the humidity gets up to 100 as often. Thank God for air conditioning! I’m not very active & I stay indoors. A friend of mine had profuse sweating, her Drs. figured out that it was a combination of her meds.
Yep, it must be part of CIDP & GBS, since so many of us have it!
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July 13, 2010 at 8:02 pm
Hi everyone,
Just wanted to let you all know that nothing has changed! If anything, I think I am sweating MORE! I would have never even thought it was possible. I have recently had to hire someone to help me around the house. She lives with us and helps us with the kids and the house because I just went through a 6 week slumber where I was only awake for about 7 hours a day. My husband could no longer handle my load of the housework, mostly with the kids. I was in the hospital during one of those weeks for IVIG and I told him that he should look into hiring help for the time I was going to be gone. He said “I can handle it”. I let him know that when Mom is out of the picture, Dad doesn’t realize that his workload isn’t doubled, it is quadrupeled(not sure how to spell that one)!!!!! He said no need. Well, 2 weeks into my home recovery, he came into our bedroom and gave me an FYI “I am looking for a live in Nanny, I can’t do this anymore”.
We were so lucky to find someone that has been with us for 3 weeks, but has had ties to his family in one way or another for 40 years! I let her know of my illness and she did some research, but we are both stumped on the sweating part of it. She is here to do most of the heavy work. When I get involved and do any little thing, I am soaking wet, like I just showered with my clothes on and she is bone dry.
I know it is this Damn disease doing this to us. Any doctor who says otherwise or thinks otherwise shoukd keep their mouth shut. There aren’t enough “specialist” who know every symptom that this disease brings us to dismiss any symptoms we bring up. All I know is that when I was healthy and worked out at the gym, I didn’t sweat as much as I do now when I try to squeeze a lemon! 😮
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