All About Advocacy

Your voice will strengthen ours.
Together we have a better chance to make a difference for all GBS and CIDP patients. Please join us by speaking up. Write to your Congressional Representative or just get more informed to better advocate for the GBS or CIDP patient in your life.

It really does help.

What’s Important: Advocacy Priorities for 2012
The GBS/CIDP Foundation International has been and continues to be very concerned about the health care reform law (Affordable Care Act – ACA) passed in 2010. Many of its’ parts have been implemented yet many more very critical components have not.
Become an Advocate
Advocacy doesn’t just focuses on grass roots efforts, political rallying, and contacting your elected government officials. It’s also about expressing your concerns, desires, & passion with others hoping to make a difference. Just like you.
National Topics
The GBS/CIDP Foundation International has been and continues to be very concerned about the health care reform law (Affordable Care Act – ACA) passed in 2010. Many of its’ parts have been implemented yet many more very critical components have not.
State Topics
The GBS/CIDP Foundation International has been and continues to be very concerned about the health care reform law (Affordable Care Act – ACA) passed in 2010. Many of its’ parts have been implemented yet many more very critical components have not.
Health & Insurance
The GBS/CIDP Foundation International has been and continues to be very concerned about the health care reform law (Affordable Care Act – ACA) passed in 2010. Many of its’ parts have been implemented yet many more very critical components have not.
Denied IVIG Treatment?
The GBS/CIDP Foundation International has been and continues to be very concerned about the health care reform law (Affordable Care Act – ACA) passed in 2010. Many of its’ parts have been implemented yet many more very critical components have not.

 

OTHER ADVOCACY TOOLS & RESOURCES

Congressional Letters

Educational Web Links

GBS/CIDP Presentations

Healthcare Law Summary

Healthcare Reform Law

Letters from the Foundation

Medicare

Medicaid

Handling Insurance Problems

  • Centers of Excellence

  • Connect With Us

  • Topics of Interest

    research-grants

    Upcoming Special Events

    The GBS/CIDP Foundation of Canada is hosting the Canadian Eastern Conference in Halifax, Nova Scotia. This is your chance to learn about all aspects of GBS, CIDP and its variants from initial diagnosis to treatment and rehabilitation. Be sure to check our Community Events page for upcoming chapter meetings in a city near you.


    research-grants

    CSL Behring Announces Trial for CIDP Patients

    CSL Behring has announced that the first patient has been enrolled in the PATH study, an international clinical trial designed to evaluate the efficacy, safety, and tolerability of two different doses of subcutaneous immunoglobulin (SCIg), compared with placebo, in maintenance treatment of chronic inflammatory demyelinating polyneuropathy (CIDP).


    research-grants

    May is GBS/CIDP Awareness Month

    During the month of May, in an effort to increase awareness in each of our communities, we encourage everyone to organize activities that highlight GBS, CIDP and their variants. Throughout the world, individuals and groups have organized fundraising events such as walks, runs, bake sales, fashion shows, cocktail receptions, and art shows.
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