YOUR VOICE WILL STRENGTHEN OURS
Together we have a better chance to make a difference for all GBS and CIDP patients. Please join us by speaking up. Write to your Congressional Representative or just get more informed to better advocate for the GBS or CIDP patient in your life.
It really does help.
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What’s Important: Advocacy Priorities The GBS/CIDP Foundation International has been and continues to be very concerned about the health care reform law (Affordable Care Act – ACA) passed in 2010. Many of its’ parts have been implemented yet many more very critical components have not. |
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Become an Advocate Advocacy doesn’t just focus on grass roots efforts, political rallying, and contacting your elected government officials. It’s also about expressing your concerns, desires, & passion with others hoping to make a difference. Just like you. |
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Health & Insurance The GBS/CIDP Foundation International has been and continues to be very concerned about the health care reform law (Affordable Care Act – ACA) passed in 2010. Many of its’ parts have been implemented yet many more very critical components have not. |
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Denied IVIG Treatment? If you have been denied treatment for IVIG, please let us know. We’ll reach out to you as soon as we can to see how we can help. |
IVIG Access Critical to Those With Rare Neurological Disorders
This article is written by Ed Gdula, the director of advocacy for the GBS-CIDP Foundation. It discusses IVIG access and its importance to those with rare neurological disorders, including GBS and CIDP.
OTHER ADVOCACY TOOLS & RESOURCES
Congressional Letters
Educational Web Links
- For clinical trial information
- For current information on Medicare & Medicaid:
- For Health Care reform law information:
GBS/CIDP Presentations
- A-Plus MSM Presentation
- Grassroots Advocacy Handbook 2010
- U.S. Health Coverage Status- Connecting to and Engaging Associated Reimbursement and Disability Issues/ Events
Healthcare Law Summary
Healthcare Reform Law
- Focus on Health Reform: High Risk Pools
- Focus on Health Reform: Summary of New Health Reform Law
- Health Reform Implementation Timeline
- PPACA Implementation: Consumer Recommendations for Regulators and Lawmakers May, 2010
Letters from the Foundation
- APLUS MSM Statement
- Coalition Letter to Sen Baucus
- Coalition Letter to Sen Grassley
- Principles on Letterhead
Medicare
- Health Reform and Medicare
- Medicare: A Primer
- Medicare Advantage Data Spotlight 2010
- Medicare Plan Enrollment and Trends
- Your Medicare Guide
Medicaid
- Explaining Health Reform
- Medicaid Agencies Prepare for Helath Care Reform
- Medicaid and Low Income Childless Adults
Handling Insurance Problems
Expert diagnosis & management of inflammatory neuropathies is critical to our patients. This is what our medical advisory board members had in mind when setting up the new Centers of Excellence program. A year later, we continue to add healthcare facilities providing exactly that.
