All About Advocacy

YOUR VOICE WILL STRENGTHEN OURS

Together we have a better chance to make a difference for all GBS and CIDP patients. Please join us by speaking up. Write to your Congressional Representative or just get more informed to better advocate for the GBS or CIDP patient in your life.

It really does help.

What’s Important: Advocacy Priorities
The GBS/CIDP Foundation International has been and continues to be very concerned about the health care reform law (Affordable Care Act – ACA) passed in 2010. Many of its’ parts have been implemented yet many more very critical components have not.
Become an Advocate
Advocacy doesn’t just focus on grass roots efforts, political rallying, and contacting your elected government officials. It’s also about expressing your concerns, desires, & passion with others hoping to make a difference. Just like you.
Health & Insurance
The GBS/CIDP Foundation International has been and continues to be very concerned about the health care reform law (Affordable Care Act – ACA) passed in 2010. Many of its’ parts have been implemented yet many more very critical components have not.
Denied IVIG Treatment?
If you have been denied treatment for IVIG, please let us know. We’ll reach out to you as soon as we can to see how we can help.

 

IVIG Access Critical to Those With Rare Neurological Disorders
This article is written by Ed Gdula, the director of advocacy for the GBS-CIDP Foundation. It discusses IVIG access and its importance to those with rare neurological disorders, including GBS and CIDP.
OTHER ADVOCACY TOOLS & RESOURCES

Congressional Letters

Educational Web Links

GBS/CIDP Presentations

Healthcare Law Summary

Healthcare Reform Law

Letters from the Foundation

Medicare

Medicaid

Handling Insurance Problems

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