SHARING STORIES CAN HELP THE HEALING
“The destiny of the world is determined less by the battles that are lost and won than by the stories it loves and believes in.” —Harold Goddard
TAMARA
In 2007 I was diagnosed with Guillain-Barré Syndrome, I was unable to walk and lost feeling from my neck down. During the next two years I went through IVIG treatments, physical therapy, and many medications to help relieve my symptoms.
Slowly and with lots of patience I started to go for walks and worked my way up to a few yoga classes during the week. Now four years later I am teaching yoga and group fitness class, finished my first half marathon in January 2011, and I completed my first triathlon on May 15, 2011. I am super excited for everything that I have been able to accomplish and want to give back.
On May 15, 2011, I raced in the Tempe International Triathlon in Arizona. I swam 1/4 mile, biked 12.4 miles, and ran 3.1 miles. Donations were collected and went directly to the GBS-CIDP Foundation. I used this race to say thank you and to move for those who can’t. Thank you for helping!
KIT
In April of 2009 Kit Ooraikul was stricken with a severe case of Guillain-Barré syndrome. His wife documented his journey through the various stages of GBS, the wonderful treatment he received in Grey Nuns Hospital ICU (unit 24), and his remarkable recovery.
Kit’s Journey from Kit Ooraikul on Vimeo. Thank you for helping!
BOB
My journey in pictures from Feb 3, 2010 to July 15, 2010. Dedicated to Neurologist Dr. Madeleine Geraghty, Kit of “Kit’s Story”, my wife and children.
Guillain-Barré Syndrome in pictures. from eqshannon on Vimeo.
SOFI
Sofi’s time at Milwaukee Children’s Hospital with Guillain Barre Syndrome, her recovery and life since then. A video of appreciation for the caregivers at Children’s Hospital.
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Expert diagnosis & management of inflammatory neuropathies is critical to our patients. This is what our medical advisory board members had in mind when setting up the new Centers of Excellence program. A year later, we continue to add healthcare facilities providing exactly that.
