Latest News On Relevant Topics
Given these disorders are so rare, it can be challenging to find news stories, blogs or other online information. As part of keeping our community informed and up-to-date, we continually gather news-worthy information and share it here.
We also like hearing from you about the types of stories, articles, etc.. that you are interested in reading. Feel free to send us feedback or even articles that you suggest would be appropriate and helpful for others.
Former quarterback Danny Wuerffel has been diagnosed with Guillain-Barré syndrome - Wuerffel noticed he was losing sensation in his legs and strength in his arms shortly after he battled a stomach virus June 4. Read complete article.
GBS Cluster on US-Mexico Border - In late July of 2011, Reuters published an article on the Arizona Department of Health Services reporting of a cluster of 24 cases of GBS in Yuma County. It is located in far western Arizona and neighboring San Luis Rio Colorado, in Mexico’s northern Sonora state.
Even though an earlier article on msnbc.com had reported it was likely to be food poisoning, a later article from Food Safety News associated the outbreak to the local water supply. It’s unclear at this point whether the water had contributed to the outbreak.
The Largest Survey of CIDP Patients Published in July 2011 - A survey was mailed to 2,400 patients registered with the GBS-CIDP Foundation International in December 2010.
The assessment form contained questions on demographics, past and present treatment patterns, disability level, neuropathic pain & quality of life (QOL), and insurance. Disability was measured using the Rasch-built Overall Disability Score (R-ODS), a 22-item instrument specifically designed for patients with GBS and CIDP. QOL was captured using the SF-36. Descriptive statistics were used in the analysis. More
Wearable Robots Help Paralyzed Warriors Walk Again - Walking is one of the many things in life that most of us take for granted. Now, for those who can’t, a technological marvel could prove miraculous. Read complete article.
Expert diagnosis & management of inflammatory neuropathies is critical to our patients. This is what our medical advisory board members had in mind when setting up the new Centers of Excellence program. A year later, we continue to add healthcare facilities providing exactly that.
